Supports & Resources

KCNQ2 Family Supports and Resources

KCNQ2 Caregiver Support Group

KCNQ2 Conference-150

KCNQ2 Cure hosts a caregiver support group. The families in the support groups recognize the immeasurable value of communicating and sharing experiences in a closed/confidential setting. By sharing our stories, we pass on information related to the diagnosis, treatments, medications, and research. The families in the group provide comfort, support, strength, and love when you need them most.

If you are the caregiver of someone affected by KCNQ2-related encephalopathy, you may request to join by following the steps below:

  • Fill out the form below to request to join the KCNQ2 Cure Family Connections Support Group and agree to the Terms of Use.
  • Request to join our Support Group on Facebook (you must have a Facebook account to proceed).
  • If you do not receive an approval notice on Facebook within 5 business days, check your email spam folder and send us a message.
  • We may require additional information to process your request.

Resource Downloads