Connections have happened around the world. Contact us to help connect you with people in your region or if you have meet up photos you would like to share.
The KCNQ2 Cure Alliance is excited to announce our UK family meet up. In addition to European and American families, Dr. Sarah Weckhuysen will be joining us from Belgium to give a presentation. For those who are not familiar with Dr. Weckhuysen, she was instrumental in the discovery of KCNQ2 Encephalopathy.
The event is open to all families with a KCNQ2 epilepsy diagnosis. Meet ups are a great way for you and your extended family to meet others who have a loved one with KCNQ2 Encephalopathy to share stories, compare resources and find new kinds of support.
Our specific location has yet to be determined, but we will post an update soon.
Looking forward to meeting many new families!