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BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20191022T180000
DTEND;TZID=Australia/Melbourne:20191022T180000
DTSTAMP:20260404T030245
CREATED:20190726T181246Z
LAST-MODIFIED:20190726T181246Z
UID:76878-1571767200-1571767200@www.kcnq2cure.org
SUMMARY:2019 New Horizons in Science Dinner - Gone Viral
DESCRIPTION:Date: Tuesday 22 October 2019\nTime: 6pm drinks for 6:30pm dinner \nLocation: PwC Melbourne 2 Riverside Quay Southbank\, VIC\, 3006\nDress Code: Business \nDonation: Suggested Sponsor Donation for a table\n•   Gold sponsor $10\,000\n•   Silver Sponsor $8\,000\n•   Bronze Sponsor $5\,000 \nPlease donate to our KCNQ2 Cure Alliance via:\nBank Account Name: KCNQ2 Epilepsy Foundation\nKCNQ2 Bank Account Number: 1491545\nBSB Number: 033039 \nSuggested Donation per Individual: $250 \nRSVP\nby Tuesday 1 October 2019\nbgleeson@bespokeapproach.com \nContact\nBriony Gleeson 0396 540 735\nbgleeson@bespokeapproach.com
URL:https://www.kcnq2cure.org/event/2019-new-horizons-in-science-dinner-gone-viral/
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=application/pdf:https://www.kcnq2cure.org/wp-content/uploads/2019/07/New-Horizons-in-Science-Dinner-Invitation-22-October-2019.pdf
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20191019
DTEND;VALUE=DATE:20191021
DTSTAMP:20260404T030245
CREATED:20190514T190801Z
LAST-MODIFIED:20190516T134448Z
UID:689-1571443200-1571615999@www.kcnq2cure.org
SUMMARY:KCNQ2 goes GLOCAL
DESCRIPTION:This October 19th and 20th we want as many people as possible to find a way to celebrate the KCNQ2 community and to raise some money at the same time. We are a diverse group with many different ages and locations. And though we are global we are made up of people living in different local communities. So we want to show people how global and local (Glocal) we are. \nOur plan is to get as many people to organize as many local events as possible. A 5K\, a walk to a local landmark\, a potluck\, a hike to the top of a local mountain\, an afternoon at a local park\, a trek to a local brewery. Anything! We want YOU to plan something that you can do in your community to celebrate our KCNQ2 kids\, even better if it’s able to raise some money to help advance research toward a cure.
URL:https://www.kcnq2cure.org/event/kcnq2-goes-glocal/
CATEGORIES:Awareness,Fundraiser
ATTACH;FMTTYPE=image/jpeg:https://www.kcnq2cure.org/wp-content/uploads/2019/05/glocal_fundraiser_graphic-01-e1558013975757.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190810T150000
DTEND;TZID=America/New_York:20190810T180000
DTSTAMP:20260404T030245
CREATED:20190720T215119Z
LAST-MODIFIED:20190720T215625Z
UID:76870-1565449200-1565460000@www.kcnq2cure.org
SUMMARY:Fam Summer Classic
DESCRIPTION:Join our friends and families as they raise awareness of KCNQ2. A portion of the proceeds will go to KCNQ2 Cure Alliance to help Nolan and his friends find better medicine to live their best life possible.
URL:https://www.kcnq2cure.org/event/fam-summer-classic/
LOCATION:Jersey Shore Arena\, Wall\, NJ
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=image/jpeg:https://www.kcnq2cure.org/wp-content/uploads/2019/07/nolan-awareness-e1563659648807.jpg
ORGANIZER;CN="Patrick Lynch":MAILTO:nfftreas@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20181031T180000
DTEND;TZID=Australia/Melbourne:20181031T220000
DTSTAMP:20260404T030245
CREATED:20180924T022254Z
LAST-MODIFIED:20190726T175339Z
UID:76747-1541008800-1541023200@www.kcnq2cure.org
SUMMARY:2018 New Horizons and Science - JURASSIC ARC: From Dinosaurs to DNA
DESCRIPTION:Presented by KCNQ2 Cure Alliance and PwC Australia \nDiscoveries from the New Age of Exploration. \nJoin us for a night of scientific wow and wonder to raise money for those with a change in theri KCNQ2 gene. \nDr. Lindsay Zanno is a trailblazer in more ways than one. She’s the woman who trekked the rugged American desert to hunt for one-of-a-kind find — and hit pay dirt. In March\, this pioneering paleontologist uncovered a rare cache of 97 million-year-old dinosaur eggs. \nProfessor Steven Petrou charts the landscape of the human mind. The Director of Melbourne’s Florey Institute of Neuroscience and Mental Health is a globally recognized leader in rare brain disorders and a master of the lab. \nRSVP to bgleeson@bespokeapproach.com
URL:https://www.kcnq2cure.org/event/jurassic-arc/
LOCATION:Fundraiser_handbook_cover
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=image/jpeg:https://www.kcnq2cure.org/wp-content/uploads/2019/03/KCNQ2_explained_2-01.jpg
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BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20171017T180000
DTEND;TZID=Australia/Melbourne:20171017T210000
DTSTAMP:20260404T030245
CREATED:20170907T165547Z
LAST-MODIFIED:20190726T175155Z
UID:49968-1508263200-1508274000@www.kcnq2cure.org
SUMMARY:2017 New Horizons in Science
DESCRIPTION:In our second annual scientific dinner\, world-leading researchers King and\nOlson explore the latest scientific frontier—and explain how venom from\ntarantulas\, scorpions\, sea anemones and pit vipers could help save lives. \n[one_half][/one_half][one_half_last][/one_half_last]
URL:https://www.kcnq2cure.org/event/new-horizons-science/
CATEGORIES:Fundraiser
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BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20170720T190000
DTEND;TZID=Australia/Melbourne:20170720T220000
DTSTAMP:20260404T030245
CREATED:20170715T200421Z
LAST-MODIFIED:20190611T164709Z
UID:32243-1500577200-1500588000@www.kcnq2cure.org
SUMMARY:Politics and Other Drugs
DESCRIPTION:Join Emmy award-winning journalist Sara James for your political fix\, 7pm Thursday 20th July at the Macedon Wine Room in Melbourne\, Australia. \nTrampled by the Trump Train? Broken by Brexit? Left wondering about One Nation? You’ve just survived the Year of Voting Dangerously. The most shocking series of elections since WWII shook the world order and shattered assumptions.\nWhy did it happen and what lies ahead for Australia\, the US and the world? \nABC’s American in Oz explores the big trends and explains how hackers and hillbillies\, salamanders and salmon\, Fake News\, Facebook and a fancy New York wedding culminated in a New World Order. And then of course there’s Russia. \nIf you like Real News served with a dash of data and a generous helping of humour\, please join us. There’ll be jazz & blues band ‘The BluePrints’ and an amazing 3 course meal designed by chef/owner Steven Gerdes. \nTickets are $75 per head – bookings required. A portion of all proceeds support KCNQ2 Cure for medical research into rare genetic epilepsies. Please join us for truly special evening. Book now on (03) 5426 3030
URL:https://www.kcnq2cure.org/event/politics-and-other-drugs/
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=:
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DTSTART;TZID=Australia/Melbourne:20160316T170000
DTEND;TZID=Australia/Melbourne:20160316T200000
DTSTAMP:20260404T030245
CREATED:20160213T154443Z
LAST-MODIFIED:20190611T165314Z
UID:295-1458147600-1458158400@www.kcnq2cure.org
SUMMARY:New Horizons
DESCRIPTION:Our international foundation is hosting a very special dinner in Melbourne\, Australia on March 16th featuring Alice Bowman of NASA’s New Horizons Mission. We are delighted that New Horizons: The Woman Who Led Us to Pluto will be sponsored by PwC Australia. Proceeds from the night support research for a cure for KCNQ2. \nIt was in July\, 2015 that Alice Bowman gave a ‘thumbs up” beamed around the world.   NASA’s New Horizons spacecraft had successfully completed a daring nine year\, 4.2 billion kilometre journey to Pluto.  Under Bowman’s leadership\, the team had to solve mind-bending technical problems\, including how to fix a last-minute glitch which caused them to lose contact with the satellite just days away from Pluto.  Their successful efforts resulted in breathtaking images which transformed our knowledge of a planet and our solar system.     \nMs Bowman will detail the ingenuity\, skill and teamwork required to lead NASA’s most ambitious effort in a generation.  \nAlice Bowman is the first woman mission operations manager for Johns Hopkins University’s Applied Physics Laboratory\, which designed and operates the spacecraft for NASA.  Nearly fifty percent of those in mission control are women and the team exemplifies diversity.  \nOur event also features Professor Ingrid Scheffer\, Loréal-UNESCO Laureate for Women in Science for the Asia-Pacific and Professor at the University of Melbourne and Florey Institute.  Dr Scheffer will highlight new horizons in the field of genetics including research for those with rare conditions like KCNQ2.   \nI’ll moderate the event\, which celebrates scientific achievement\, women in leadership\, and diversity.  I had the good fortune to attend high school and university with Alice\, who is a wonderful person.  We  will discuss what it takes to turn the impossible into Mission Accomplished.    \nThis event also showcases U.S./Australian collaboration in science.  The efforts of Canberra’s Deep Space Station were integral to the New Horizons mission – a mission which continues to this day. In addition\, Professor Scheffer is on the scientific advisory board of the KCNQ2 Cure Alliance Foundation.
URL:https://www.kcnq2cure.org/event/new-horizons/
CATEGORIES:Fundraiser
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20151113
DTEND;VALUE=DATE:20151114
DTSTAMP:20260404T030245
CREATED:20160212T214545Z
LAST-MODIFIED:20190611T165049Z
UID:279-1447372800-1447459199@www.kcnq2cure.org
SUMMARY:Disney-Pixar – The Good Dinosaur
DESCRIPTION:
URL:https://www.kcnq2cure.org/event/disney-pixar-the-good-dinosaur/
CATEGORIES:Fundraiser
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20150425T180000
DTEND;TZID=America/Denver:20150425T210000
DTSTAMP:20260404T030245
CREATED:20160213T034439Z
LAST-MODIFIED:20190611T165101Z
UID:731-1429984800-1429995600@www.kcnq2cure.org
SUMMARY:Cocktails for a Cure
DESCRIPTION:http://www.kcnq2cure.org/wp-content/uploads/2016/02/cocktails-for-cure-copy.jpeg \nPlease Join Us For \nThe First Annual Fundraiser for KCNQ2 Cure Alliance \nSaturday\, April 25\n6:00-9:00pm\nTickets $25 \nAuction Items Include:\nWe have amazing auction items that include:\n· NEW YORK CITY VACATION: Airfare for two and 5 nights at W Times Square hotel\n· MONTANA / GLACIER NATIONAL PARK: Airfare for four people and private guest cottage for up 7 nights\n· NORTH CAROLINA CABIN TRIP: 4 Nights in the heart of the Smokey Mountains\n· DISNEY FAMILY TRIP: Airfare for four; 3 Nights and Car Rental in Orlando. Staying at Hyatt Regency Grand Cypress.\n· TELEVISED FISHING TRIP WITH DON DUBUC – Chartered fishing trip with Don Debuc to be aired three times on WWL-TV.\n· LSU VS. AUBURN – September 19th – Two Tickets West Sideline 43rd Row\, 45 yard line. \nWe will have a silent auction with great original artwork\, beauty items\, professional services\, overnight trips to New Orleans as well as a raffle featuring an iPad Air 2\, Stock your bar option\, and creole stuffed chickens from Chris’ Meats. \nFood Donated by Jacmel Inn \nHosted by Joe Arthur & Julia Sims and William & Destin Sims\nEvening Schedule\nCocktails & Silent Auction 6:00 pm – 8:30 pm\nSilent Auction Tables Will begin Closing at 8:15 pm\nLive Auction 8:00 pm\nImmediately following the Live Auction\, finish off your evening with dancing!!\nLive Music\nCheck-Out Begins 9:00 pm\nCash\, Personal Checks\, Credit Cards will be accepted.\nWe extend our gratitude to all of the sponsors\, advertisers and businesses\n that have made such generous contributions to our event.\n And\, we encourage you to give your support to these wonderful friends. \nHarper Johnson\, the daughter of Jim Johnson and Scotty Sims (from Ponchatoula)\, was diagnosed at the age of 1 with a very rare and severe neurological genetic condition called KCNQ2 Epilepsy. There are less than 150 know cases worldwide. \nWe were told she might never leave the hospital and would never walk or talk\, but we strongly believed otherwise. \nThis condition is extremely challenging as most KCNQ2 children suffer from terrible seizures\, have Autism\, are non-verbal and have significant cognitive delays. Seizures are particularly challenging and although Harper’s stopped at 5 weeks of age\, we are told they will most likely return. \nAlthough KCNQ2 Epilepsy hinders the ability to communicate among other developmental milestones\, all the KCNQ2 children share an incredible will to try! They are fighters! And like Harper\, they all light up the world with their laughter and tremendous smiles. \nWe are grateful that there are scientists and medical professionals researching KCNQ2 Epilepsy to try and find a cure! The more we can learn\, the more we can do to help our children gain ability and live easier\, healthier lives. \nThe KCNQ2 Cure Alliance is raising money for research and to support the annual Summit. Harper’s parents\, Scotty Sims and Jim Johnson started the KCNQ2 Cure Alliance with two other families (Sara James and Caroline Loewy) to help support research and host an Annual Summit to educate professionals and bring families together. For more information on Harper’s story\, please visit her Facebook page. \nWe ask you to join us in raising funds for a CURE! Purchase tickets below. If you are not able to attend but would like to donate\, please click the Donate button.
URL:https://www.kcnq2cure.org/event/cocktails-for-a-cure/
CATEGORIES:Fundraiser
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