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X-WR-CALNAME:KCNQ2 Cure Alliance
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X-WR-CALDESC:Events for KCNQ2 Cure Alliance
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UID:678-1588320000-1588525200@www.kcnq2cure.org
SUMMARY:2020 KCNQ2 Cure Family & Professional Summit
DESCRIPTION:Join us for KCNQ2 Cure’s 6th Family and Professional Summit which joins all groups committed to improving the lives of those impacted by KCNQ2 encephalopathy – including families\, caregivers\, clinicians\, researchers and professionals in the pharmaceutical industry. There will be speaker presentations on the latest advances in research as well as sessions with up to date information impacting patient care. This event allows the opportunity to foster new relationships and collaborations\, both for families and professionals.
URL:https://www.kcnq2cure.org/event/2020-kcnq2-cure-family-professional-summit/
LOCATION:3549 Chestnut Street\, Philadelphia\, PA\, 19104\, United States
CATEGORIES:Summit
ATTACH;FMTTYPE=image/jpeg:https://www.kcnq2cure.org/wp-content/uploads/2019/03/Summit2020_SaveDate.jpg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20250301
DTEND;VALUE=DATE:20250308
DTSTAMP:20240926T203017Z
CREATED:20240926T203017Z
LAST-MODIFIED:20240926T203017Z
UID:77571-1740787200-1741391999@www.kcnq2cure.org
SUMMARY:KCNQ2 Awareness Week
DESCRIPTION:
URL:https://www.kcnq2cure.org/event/kcnq2-awareness-week/
CATEGORIES:Awareness
ATTACH;FMTTYPE=image/jpeg:https://www.kcnq2cure.org/wp-content/uploads/2023/02/KCNQ2_Awareness_FINAL_2023-01-scaled.jpg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260301
DTEND;VALUE=DATE:20260308
DTSTAMP:20260310T172503Z
CREATED:20260310T171328Z
LAST-MODIFIED:20260310T172503Z
UID:78122-1772323200-1772927999@www.kcnq2cure.org
SUMMARY:KCNQ2 Awareness Week
DESCRIPTION:KCNQ2 Awareness Week\, March 1-7\, is an annual\, global initiative dedicated to raising awareness\, advancing education\, and strengthening advocacy for the international KCNQ2 community. \nWhat began as a small group of passionate families has grown into a vibrant\, collaborative community driving meaningful progress for a rare disorder.
URL:https://www.kcnq2cure.org/event/kcnq2-awareness-week-2/
CATEGORIES:Awareness
ATTACH;FMTTYPE=image/png:https://www.kcnq2cure.org/wp-content/uploads/2026/02/feature-header-mobile-900x700-channeling-hope-awareness.png
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BEGIN:VEVENT
DTSTART;TZID=America/Denver:20260930T000000
DTEND;TZID=America/Denver:20261101T000000
DTSTAMP:20261001T010309Z
CREATED:20260930T222343Z
LAST-MODIFIED:20261001T010309Z
UID:78646-1790726400-1793491200@www.kcnq2cure.org
SUMMARY:KCNQ2 Boo
DESCRIPTION:
URL:https://www.kcnq2cure.org/event/kcnq2-boo/
CATEGORIES:Fundraiser
ATTACH;FMTTYPE=image/png:https://www.kcnq2cure.org/wp-content/uploads/2026/09/kcnq2-boo-196-for-website.png
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BEGIN:VEVENT
DTSTART;TZID=America/Denver:20261013T180000
DTEND;TZID=America/Denver:20261013T190000
DTSTAMP:20261001T011957Z
CREATED:20261001T011957Z
LAST-MODIFIED:20261001T011957Z
UID:78660-1791914400-1791918000@www.kcnq2cure.org
SUMMARY:Caregiver Connect
DESCRIPTION:It’s a casual Zoom chat for KCNQ2 parents and caregivers. No agenda\, no presentations. Just real conversation with people who get it. Ask questions\, share what’s on your mind\, or just listen. Come for as long as you’d like.
URL:https://www.kcnq2cure.org/event/caregiver-connect/
CATEGORIES:Meet-ups
ATTACH;FMTTYPE=image/png:https://www.kcnq2cure.org/wp-content/uploads/2026/09/169-caregiver-connect-website.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20270623
DTEND;VALUE=DATE:20270626
DTSTAMP:20261002T185100Z
CREATED:20261002T185100Z
LAST-MODIFIED:20261002T185100Z
UID:78710-1813708800-1813967999@www.kcnq2cure.org
SUMMARY:2027 KCNQ2 Cure Family and Research Summit
DESCRIPTION:Most families reach this community by a rare\, lonely road. For a long time\, it can feel as though no one else has ever traveled it. Yet the family beside you set out on a road much like yours: the turns differ\, but the road is the same. \nThe KCNQ2 Cure Family and Research Summit is the weekend the road stops being lonely. Three days when the scientists studying this gene\, the clinicians turning it into care\, and the families living it every single day stand in one place\, at one time\, for one another.
URL:https://www.kcnq2cure.org/event/kcnq2-family-research-summit/
CATEGORIES:Summit
ATTACH;FMTTYPE=image/png:https://www.kcnq2cure.org/wp-content/uploads/2026/10/2027-KCNQ2-Summit.png
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