BEGIN:VCALENDAR VERSION:2.0 PRODID:-//KCNQ2 Cure Alliance - ECPv6.18.2//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-ORIGINAL-URL:https://www.kcnq2cure.org X-WR-CALDESC:Events for KCNQ2 Cure Alliance REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20180311T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20181104T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20190310T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20191103T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20200308T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20201101T060000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:America/Denver BEGIN:DAYLIGHT TZOFFSETFROM:-0700 TZOFFSETTO:-0600 TZNAME:MDT DTSTART:20180311T090000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0600 TZOFFSETTO:-0700 TZNAME:MST DTSTART:20181104T080000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0700 TZOFFSETTO:-0600 TZNAME:MDT DTSTART:20190310T090000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0600 TZOFFSETTO:-0700 TZNAME:MST DTSTART:20191103T080000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0700 TZOFFSETTO:-0600 TZNAME:MDT DTSTART:20200308T090000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0600 TZOFFSETTO:-0700 TZNAME:MST DTSTART:20201101T080000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0700 TZOFFSETTO:-0600 TZNAME:MDT DTSTART:20210314T090000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0600 TZOFFSETTO:-0700 TZNAME:MST DTSTART:20211107T080000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0700 TZOFFSETTO:-0600 TZNAME:MDT DTSTART:20220313T090000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0600 TZOFFSETTO:-0700 TZNAME:MST DTSTART:20221106T080000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0700 TZOFFSETTO:-0600 TZNAME:MDT DTSTART:20230312T090000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0600 TZOFFSETTO:-0700 TZNAME:MST DTSTART:20231105T080000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0700 TZOFFSETTO:-0600 TZNAME:MDT DTSTART:20240310T090000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0600 TZOFFSETTO:-0700 TZNAME:MST DTSTART:20241103T080000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0700 TZOFFSETTO:-0600 TZNAME:MDT DTSTART:20250309T090000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0600 TZOFFSETTO:-0700 TZNAME:MST DTSTART:20251102T080000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0700 TZOFFSETTO:-0600 TZNAME:MDT DTSTART:20260308T090000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0600 TZOFFSETTO:-0700 TZNAME:MST DTSTART:20261101T080000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0700 TZOFFSETTO:-0600 TZNAME:MDT DTSTART:20270314T090000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0600 TZOFFSETTO:-0700 TZNAME:MST DTSTART:20271107T080000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0700 TZOFFSETTO:-0600 TZNAME:MDT DTSTART:20280312T090000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0600 TZOFFSETTO:-0700 TZNAME:MST DTSTART:20281105T080000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:Australia/Melbourne BEGIN:STANDARD TZOFFSETFROM:+1100 TZOFFSETTO:+1000 TZNAME:AEST DTSTART:20180331T160000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+1000 TZOFFSETTO:+1100 TZNAME:AEDT DTSTART:20181006T160000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+1100 TZOFFSETTO:+1000 TZNAME:AEST DTSTART:20190406T160000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+1000 TZOFFSETTO:+1100 TZNAME:AEDT DTSTART:20191005T160000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+1100 TZOFFSETTO:+1000 TZNAME:AEST DTSTART:20200404T160000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+1000 TZOFFSETTO:+1100 TZNAME:AEDT DTSTART:20201003T160000 END:DAYLIGHT END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/New_York:20190810T150000 DTEND;TZID=America/New_York:20190810T180000 DTSTAMP:20190720T215625Z CREATED:20190720T215119Z LAST-MODIFIED:20190720T215625Z UID:76870-1565449200-1565460000@www.kcnq2cure.org SUMMARY:Fam Summer Classic DESCRIPTION:Join our friends and families as they raise awareness of KCNQ2. A portion of the proceeds will go to KCNQ2 Cure Alliance to help Nolan and his friends find better medicine to live their best life possible. URL:https://www.kcnq2cure.org/event/fam-summer-classic/ LOCATION:Jersey Shore Arena\, Wall\, NJ CATEGORIES:Fundraiser ATTACH;FMTTYPE=image/jpeg:https://www.kcnq2cure.org/wp-content/uploads/2019/07/nolan-awareness-e1563659648807.jpg ORGANIZER;CN="Patrick Lynch":MAILTO:nfftreas@gmail.com END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Denver:20190905T100000 DTEND;TZID=America/Denver:20190905T110000 DTSTAMP:20190905T212319Z CREATED:20190726T182847Z LAST-MODIFIED:20190905T212319Z UID:76880-1567677600-1567681200@www.kcnq2cure.org SUMMARY:Update on KCNQ2 Studies in the Channelopathy-associated Epilepsy Research Center without Walls DESCRIPTION:This webinar will provide updates to the KCNQ2 community regarding ongoing studies by the Channelopathy-associated Epilepsy Research Center without Walls. The main focus will be on efforts to determine the functional consequences of 80 KCNQ2 variants of unknown significance\, and on investigations using human induced pluripotent stem cells (hiPSC) to create KCNQ2-mutant neurons for physiological and pharmacological testing. This work is designed to elucidate molecular and cellular defects associated with KCNQ2 variants and explore pharmacological strategies to correct these defects. \nPresenter: Alfred L. George\, Jr.\, M.D. (Northwestern University)\nCo-presenter: Anne Berg\, Ph.D. (Northwestern University) URL:https://www.kcnq2cure.org/event/update-on-kcnq2-studies-in-the-channelopathy-associated-epilepsy-research-center-without-walls/ CATEGORIES:Webinar END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20191019 DTEND;VALUE=DATE:20191021 DTSTAMP:20190516T134448Z CREATED:20190514T190801Z LAST-MODIFIED:20190516T134448Z UID:689-1571443200-1571615999@www.kcnq2cure.org SUMMARY:KCNQ2 goes GLOCAL DESCRIPTION:This October 19th and 20th we want as many people as possible to find a way to celebrate the KCNQ2 community and to raise some money at the same time. We are a diverse group with many different ages and locations. And though we are global we are made up of people living in different local communities. So we want to show people how global and local (Glocal) we are. \nOur plan is to get as many people to organize as many local events as possible. A 5K\, a walk to a local landmark\, a potluck\, a hike to the top of a local mountain\, an afternoon at a local park\, a trek to a local brewery. Anything! We want YOU to plan something that you can do in your community to celebrate our KCNQ2 kids\, even better if it’s able to raise some money to help advance research toward a cure. URL:https://www.kcnq2cure.org/event/kcnq2-goes-glocal/ CATEGORIES:Awareness,Fundraiser ATTACH;FMTTYPE=image/jpeg:https://www.kcnq2cure.org/wp-content/uploads/2019/05/glocal_fundraiser_graphic-01-e1558013975757.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20191022T180000 DTEND;TZID=Australia/Melbourne:20191022T180000 DTSTAMP:20190726T181246Z CREATED:20190726T181246Z LAST-MODIFIED:20190726T181246Z UID:76878-1571767200-1571767200@www.kcnq2cure.org SUMMARY:2019 New Horizons in Science Dinner - Gone Viral DESCRIPTION:Date: Tuesday 22 October 2019\nTime: 6pm drinks for 6:30pm dinner \nLocation: PwC Melbourne 2 Riverside Quay Southbank\, VIC\, 3006\nDress Code: Business \nDonation: Suggested Sponsor Donation for a table\n• Gold sponsor $10\,000\n• Silver Sponsor $8\,000\n• Bronze Sponsor $5\,000 \nPlease donate to our KCNQ2 Cure Alliance via:\nBank Account Name: KCNQ2 Epilepsy Foundation\nKCNQ2 Bank Account Number: 1491545\nBSB Number: 033039 \nSuggested Donation per Individual: $250 \nRSVP\nby Tuesday 1 October 2019\nbgleeson@bespokeapproach.com \nContact\nBriony Gleeson 0396 540 735\nbgleeson@bespokeapproach.com URL:https://www.kcnq2cure.org/event/2019-new-horizons-in-science-dinner-gone-viral/ CATEGORIES:Fundraiser ATTACH;FMTTYPE=application/pdf:https://www.kcnq2cure.org/wp-content/uploads/2019/07/New-Horizons-in-Science-Dinner-Invitation-22-October-2019.pdf END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20200301 DTEND;VALUE=DATE:20200308 DTSTAMP:20190506T225644Z CREATED:20190506T225555Z LAST-MODIFIED:20190506T225644Z UID:680-1583020800-1583625599@www.kcnq2cure.org SUMMARY:2020 KCNQ2 Awareness Week DESCRIPTION:KCNQ2 Awareness week is an annual event aimed at raising awareness\, education\, and advocacy for the international community affected by KCNQ2 Epilepsy. URL:https://www.kcnq2cure.org/event/2020-kcnq2-awareness-week/ CATEGORIES:Awareness ATTACH;FMTTYPE=image/jpeg:https://www.kcnq2cure.org/wp-content/uploads/2019/04/28278356_10156336033380921_1259079168_o.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Denver:20200501T080000 DTEND;TZID=America/Denver:20200503T170000 DTSTAMP:20190506T222924Z CREATED:20190506T222924Z LAST-MODIFIED:20190506T222924Z UID:678-1588320000-1588525200@www.kcnq2cure.org SUMMARY:2020 KCNQ2 Cure Family & Professional Summit DESCRIPTION:Join us for KCNQ2 Cure’s 6th Family and Professional Summit which joins all groups committed to improving the lives of those impacted by KCNQ2 encephalopathy – including families\, caregivers\, clinicians\, researchers and professionals in the pharmaceutical industry. There will be speaker presentations on the latest advances in research as well as sessions with up to date information impacting patient care. This event allows the opportunity to foster new relationships and collaborations\, both for families and professionals. URL:https://www.kcnq2cure.org/event/2020-kcnq2-cure-family-professional-summit/ LOCATION:3549 Chestnut Street\, Philadelphia\, PA\, 19104\, United States CATEGORIES:Summit ATTACH;FMTTYPE=image/jpeg:https://www.kcnq2cure.org/wp-content/uploads/2019/03/Summit2020_SaveDate.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20250301 DTEND;VALUE=DATE:20250308 DTSTAMP:20240926T203017Z CREATED:20240926T203017Z LAST-MODIFIED:20240926T203017Z UID:77571-1740787200-1741391999@www.kcnq2cure.org SUMMARY:KCNQ2 Awareness Week DESCRIPTION: URL:https://www.kcnq2cure.org/event/kcnq2-awareness-week/ CATEGORIES:Awareness ATTACH;FMTTYPE=image/jpeg:https://www.kcnq2cure.org/wp-content/uploads/2023/02/KCNQ2_Awareness_FINAL_2023-01-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20260301 DTEND;VALUE=DATE:20260308 DTSTAMP:20260310T172503Z CREATED:20260310T171328Z LAST-MODIFIED:20260310T172503Z UID:78122-1772323200-1772927999@www.kcnq2cure.org SUMMARY:KCNQ2 Awareness Week DESCRIPTION:KCNQ2 Awareness Week\, March 1-7\, is an annual\, global initiative dedicated to raising awareness\, advancing education\, and strengthening advocacy for the international KCNQ2 community. \nWhat began as a small group of passionate families has grown into a vibrant\, collaborative community driving meaningful progress for a rare disorder. URL:https://www.kcnq2cure.org/event/kcnq2-awareness-week-2/ CATEGORIES:Awareness ATTACH;FMTTYPE=image/png:https://www.kcnq2cure.org/wp-content/uploads/2026/02/feature-header-mobile-900x700-channeling-hope-awareness.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Denver:20260930T000000 DTEND;TZID=America/Denver:20261101T000000 DTSTAMP:20261001T010309Z CREATED:20260930T222343Z LAST-MODIFIED:20261001T010309Z UID:78646-1790726400-1793491200@www.kcnq2cure.org SUMMARY:KCNQ2 Boo DESCRIPTION: URL:https://www.kcnq2cure.org/event/kcnq2-boo/ CATEGORIES:Fundraiser ATTACH;FMTTYPE=image/png:https://www.kcnq2cure.org/wp-content/uploads/2026/09/kcnq2-boo-196-for-website.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Denver:20261013T180000 DTEND;TZID=America/Denver:20261013T190000 DTSTAMP:20261001T011957Z CREATED:20261001T011957Z LAST-MODIFIED:20261001T011957Z UID:78660-1791914400-1791918000@www.kcnq2cure.org SUMMARY:Caregiver Connect DESCRIPTION:It’s a casual Zoom chat for KCNQ2 parents and caregivers. No agenda\, no presentations. Just real conversation with people who get it. Ask questions\, share what’s on your mind\, or just listen. Come for as long as you’d like. URL:https://www.kcnq2cure.org/event/caregiver-connect/ CATEGORIES:Meet-ups ATTACH;FMTTYPE=image/png:https://www.kcnq2cure.org/wp-content/uploads/2026/09/169-caregiver-connect-website.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20270623 DTEND;VALUE=DATE:20270626 DTSTAMP:20261002T185100Z CREATED:20261002T185100Z LAST-MODIFIED:20261002T185100Z UID:78710-1813708800-1813967999@www.kcnq2cure.org SUMMARY:2027 KCNQ2 Cure Family and Research Summit DESCRIPTION:Most families reach this community by a rare\, lonely road. For a long time\, it can feel as though no one else has ever traveled it. Yet the family beside you set out on a road much like yours: the turns differ\, but the road is the same. \nThe KCNQ2 Cure Family and Research Summit is the weekend the road stops being lonely. Three days when the scientists studying this gene\, the clinicians turning it into care\, and the families living it every single day stand in one place\, at one time\, for one another. URL:https://www.kcnq2cure.org/event/kcnq2-family-research-summit/ CATEGORIES:Summit ATTACH;FMTTYPE=image/png:https://www.kcnq2cure.org/wp-content/uploads/2026/10/2027-KCNQ2-Summit.png END:VEVENT END:VCALENDAR