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November 2017

Epilepsy Awareness Month

November 1, 2017 - November 30, 2017

Epilepsy is the 4th most common neurological disease in the nation. In fact, 1 in 26 people will be diagnosed with epilepsy at some point in their lifetime. Yet epilepsy remains misunderstood by the general public, discriminated against, and underfunded in research initiatives. Anyone can have epilepsy, and everyone should know about the prevalence, impact and seizure first aid. Help educate people about epilepsy by sharing a fact-a-day on your social media networks during the month of November. – Epilepsy…

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September 2018

2018 KCNQ2 Cure Family & Professional Summit

September 14, 2018 - September 16, 2018
Sheraton Park Hotel at the Anaheim Resort Anaheim, CA United States

KCNQ2 Cure is pleased to announce that our 2018 Summit will take place on September 14-16, 2018 at the Sheraton Park Hotel at the Anaheim Resort in Anaheim, California. The Summit will include family and professional sessions, childcare areas, and family events. A special room rate of $139/night + taxes and fees has been set and will be available during registration. Conference agenda and speakers to be announced. Conference registration is closed. Funding Opportunities We are aware that there are…

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October 2018

2018 New Horizons and Science – JURASSIC ARC: From Dinosaurs to DNA

October 31, 2018 @ 6:00 pm - 10:00 pm AEDT
what does kcnq2 stand for

Presented by KCNQ2 Cure Alliance and PwC Australia Discoveries from the New Age of Exploration. Join us for a night of scientific wow and wonder to raise money for those with a change in theri KCNQ2 gene. Dr. Lindsay Zanno is a trailblazer in more ways than one. She’s the woman who trekked the rugged American desert to hunt for one-of-a-kind find -- and hit pay dirt. In March, this pioneering paleontologist uncovered a rare cache of 97 million-year-old dinosaur eggs.…

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July 2019

A New Clinical Trial in KCNQ2-DEE and Upcoming Related Patient Survey

July 24, 2019 @ 10:00 am - 11:00 am MDT

A New Clinical Trial in KCNQ2-DEE and Upcoming Related Patient Survey The KCNQ2 Cure Alliance has invited Dr. John Millichap, a Pediatric Epileptologist focused on KCNQ2 developmental and epileptic encephalopathy (KCNQ2-DEE), and Dr. Simon Pimstone, CEO of Xenon Pharmaceuticals, to participate in this webinar. Moderated by Caroline Loewy from the KCNQ2 Cure Alliance, topics will include: • How mutations in the KCNQ2 gene for potassium channels in the brain are responsible for KCNQ2-DEE • What we’ve learned to date from…

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August 2019

Fam Summer Classic

August 10, 2019 @ 3:00 pm - 6:00 pm EDT
Jersey Shore Arena Wall, NJ
$10
nolan kcnq2

Join our friends and families as they raise awareness of KCNQ2. A portion of the proceeds will go to KCNQ2 Cure Alliance to help Nolan and his friends find better medicine to live their best life possible.

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September 2019

Update on KCNQ2 Studies in the Channelopathy-associated Epilepsy Research Center without Walls

September 5, 2019 @ 10:00 am - 11:00 am MDT

This webinar will provide updates to the KCNQ2 community regarding ongoing studies by the Channelopathy-associated Epilepsy Research Center without Walls. The main focus will be on efforts to determine the functional consequences of 80 KCNQ2 variants of unknown significance, and on investigations using human induced pluripotent stem cells (hiPSC) to create KCNQ2-mutant neurons for physiological and pharmacological testing. This work is designed to elucidate molecular and cellular defects associated with KCNQ2 variants and explore pharmacological strategies to correct these defects.…

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October 2019

KCNQ2 goes GLOCAL

October 19, 2019 - October 20, 2019

This October 19th and 20th we want as many people as possible to find a way to celebrate the KCNQ2 community and to raise some money at the same time. We are a diverse group with many different ages and locations. And though we are global we are made up of people living in different local communities. So we want to show people how global and local (Glocal) we are. Our plan is to get as many people to organize…

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2019 New Horizons in Science Dinner – Gone Viral

October 22, 2019 @ 6:00 pm AEDT

Date: Tuesday 22 October 2019 Time: 6pm drinks for 6:30pm dinner Location: PwC Melbourne 2 Riverside Quay Southbank, VIC, 3006 Dress Code: Business Donation: Suggested Sponsor Donation for a table • Gold sponsor $10,000 • Silver Sponsor $8,000 • Bronze Sponsor $5,000 Please donate to our KCNQ2 Cure Alliance via: Bank Account Name: KCNQ2 Epilepsy Foundation KCNQ2 Bank Account Number: 1491545 BSB Number: 033039 Suggested Donation per Individual: $250 RSVP by Tuesday 1 October 2019 bgleeson@bespokeapproach.com Contact Briony Gleeson 0396…

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March 2020

2020 KCNQ2 Awareness Week

March 1, 2020 - March 7, 2020
awareness logo

KCNQ2 Awareness week is an annual event aimed at raising awareness, education, and advocacy for the international community affected by KCNQ2 Epilepsy.

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May 2020

2020 KCNQ2 Cure Family & Professional Summit

May 1, 2020 @ 8:00 am - May 3, 2020 @ 5:00 pm MDT
3549 Chestnut Street
Philadelphia, PA 19104 United States
2020 KCNQ2 Summit

Join us for KCNQ2 Cure’s 6th Family and Professional Summit which joins all groups committed to improving the lives of those impacted by KCNQ2 encephalopathy – including families, caregivers, clinicians, researchers and professionals in the pharmaceutical industry. There will be speaker presentations on the latest advances in research as well as sessions with up to date information impacting patient care. This event allows the opportunity to foster new relationships and collaborations, both for families and professionals.

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