you are not alone

Caregiver Supports

From private Facebook support groups for parents and caregivers of loved ones with KCNQ2 to monthly virtual caregiver meetings, we are here to foster connections and provide support.

Ways to connect

Choose how you want to connect

Global Support Network

A private, confidential Facebook group for parents and caregivers of loved ones with KCNQ2.

  • Private group
  • Facebook account needed
  • Approval within 5 days
Request to join

Monthly virtual meetings

Meet other KCNQ2 caregivers online each month. Meeings are hosted the 2nd Tuesday of the month at 8PM ET.

  • Online
  • Monthly
  • 2nd Tuesday 8PM ET
Register for the next meeting

Global support

KCNQ2 Global Support Network

KCNQ2 Cure hosts a Global Caregiver Support Group. The families in the support groups recognize the immeasurable value of communicating and sharing experiences in a closed, confidential setting.

By sharing our stories, we pass on valuable information about diagnosis, treatment, medications, and ongoing research. The families in the group provide comfort, support, strength, and love when you need them most.

Unity. Hope. Strength. Love.

KCNQ2 families together at the summit

How to join

Three steps to join the network

If you are the caregiver of someone affected by a KCNQ2-related disorder, you can request to join.

  1. Request on Facebook

    Ask to join our Support Group on Facebook.

  2. Complete the form

    Fill out the form below and agree to the Terms of Use.

  3. Get approved

    Watch Facebook for your approval within 5 business days.