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September 2019

Update on KCNQ2 Studies in the Channelopathy-associated Epilepsy Research Center without Walls

September 5 @ 10:00 am - 11:00 am MDT

This webinar will provide updates to the KCNQ2 community regarding ongoing studies by the Channelopathy-associated Epilepsy Research Center without Walls. The main focus will be on efforts to determine the functional consequences of 80 KCNQ2 variants of unknown significance, and on investigations using human induced pluripotent stem cells (hiPSC) to create KCNQ2-mutant neurons for physiological and pharmacological testing. This work is designed to elucidate molecular and cellular defects associated with KCNQ2 variants and explore pharmacological strategies to correct these defects.…

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October 2019

KCNQ2 goes GLOCAL

October 19 - October 20

This October 19th and 20th we want as many people as possible to find a way to celebrate the KCNQ2 community and to raise some money at the same time. We are a diverse group with many different ages and locations. And though we are global we are made up of people living in different local communities. So we want to show people how global and local (Glocal) we are. Our plan is to get as many people to organize…

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2019 New Horizons in Science Dinner – Gone Viral

October 22 @ 6:00 pm AEDT

Date: Tuesday 22 October 2019 Time: 6pm drinks for 6:30pm dinner Location: PwC Melbourne 2 Riverside Quay Southbank, VIC, 3006 Dress Code: Business Donation: Suggested Sponsor Donation for a table • Gold sponsor $10,000 • Silver Sponsor $8,000 • Bronze Sponsor $5,000 Please donate to our KCNQ2 Cure Alliance via: Bank Account Name: KCNQ2 Epilepsy Foundation KCNQ2 Bank Account Number: 1491545 BSB Number: 033039 Suggested Donation per Individual: $250 RSVP by Tuesday 1 October 2019 bgleeson@bespokeapproach.com Contact Briony Gleeson 0396…

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March 2020

2020 KCNQ2 Awareness Week

March 1, 2020 - March 7, 2020
awareness logo

KCNQ2 Awareness week is an annual event aimed at raising awareness, education, and advocacy for the international community affected by KCNQ2 Epilepsy.

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May 2020

2020 KCNQ2 Cure Family & Professional Summit

May 1, 2020 @ 8:00 am - May 3, 2020 @ 5:00 pm MDT
3549 Chestnut Street
Philadelphia, PA 19104 United States
2020 KCNQ2 Summit

Join us for KCNQ2 Cure’s 6th Family and Professional Summit which joins all groups committed to improving the lives of those impacted by KCNQ2 encephalopathy – including families, caregivers, clinicians, researchers and professionals in the pharmaceutical industry. There will be speaker presentations on the latest advances in research as well as sessions with up to date information impacting patient care. This event allows the opportunity to foster new relationships and collaborations, both for families and professionals.

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