Epilepsy Awareness Month

Epilepsy is the 4th most common neurological disease in the nation. In fact, 1 in 26 people will be diagnosed with epilepsy at some point in their lifetime. Yet epilepsy remains misunderstood by the general public, discriminated against, and underfunded in research initiatives. Anyone can have epilepsy, and everyone should know about the prevalence, impact…

2018 KCNQ2 Cure Family & Professional Summit

Sheraton Park Hotel at the Anaheim Resort Anaheim, CA

KCNQ2 Cure is pleased to announce that our 2018 Summit will take place on September 14-16, 2018 at the Sheraton Park Hotel at the Anaheim Resort in Anaheim, California. The Summit will include family and professional sessions, childcare areas, and family events. A special room rate of $139/night + taxes and fees has been set…

2018 New Horizons and Science – JURASSIC ARC: From Dinosaurs to DNA

Fundraiser_handbook_cover

Presented by KCNQ2 Cure Alliance and PwC Australia Discoveries from the New Age of Exploration. Join us for a night of scientific wow and wonder to raise money for those with a change in theri KCNQ2 gene. Dr. Lindsay Zanno is a trailblazer in more ways than one. She’s the woman who trekked the rugged American…

A New Clinical Trial in KCNQ2-DEE and Upcoming Related Patient Survey

A New Clinical Trial in KCNQ2-DEE and Upcoming Related Patient Survey The KCNQ2 Cure Alliance has invited Dr. John Millichap, a Pediatric Epileptologist focused on KCNQ2 developmental and epileptic encephalopathy (KCNQ2-DEE), and Dr. Simon Pimstone, CEO of Xenon Pharmaceuticals, to participate in this webinar. Moderated by Caroline Loewy from the KCNQ2 Cure Alliance, topics will…

Fam Summer Classic

Jersey Shore Arena Wall, NJ

Join our friends and families as they raise awareness of KCNQ2. A portion of the proceeds will go to KCNQ2 Cure Alliance to help Nolan and his friends find better medicine to live their best life possible.

$10

Update on KCNQ2 Studies in the Channelopathy-associated Epilepsy Research Center without Walls

This webinar will provide updates to the KCNQ2 community regarding ongoing studies by the Channelopathy-associated Epilepsy Research Center without Walls. The main focus will be on efforts to determine the functional consequences of 80 KCNQ2 variants of unknown significance, and on investigations using human induced pluripotent stem cells (hiPSC) to create KCNQ2-mutant neurons for physiological…

KCNQ2 goes GLOCAL

This October 19th and 20th we want as many people as possible to find a way to celebrate the KCNQ2 community and to raise some money at the same time. We are a diverse group with many different ages and locations. And though we are global we are made up of people living in different…

2019 New Horizons in Science Dinner – Gone Viral

Date: Tuesday 22 October 2019 Time: 6pm drinks for 6:30pm dinner Location: PwC Melbourne 2 Riverside Quay Southbank, VIC, 3006 Dress Code: Business Donation: Suggested Sponsor Donation for a table • Gold sponsor $10,000 • Silver Sponsor $8,000 • Bronze Sponsor $5,000 Please donate to our KCNQ2 Cure Alliance via: Bank Account Name: KCNQ2 Epilepsy…

2020 KCNQ2 Awareness Week

KCNQ2 Awareness week is an annual event aimed at raising awareness, education, and advocacy for the international community affected by KCNQ2 Epilepsy.

2020 KCNQ2 Cure Family & Professional Summit

3549 Chestnut Street, Philadelphia, PA

Join us for KCNQ2 Cure’s 6th Family and Professional Summit which joins all groups committed to improving the lives of those impacted by KCNQ2 encephalopathy – including families, caregivers, clinicians, researchers and professionals in the pharmaceutical industry. There will be speaker presentations on the latest advances in research as well as sessions with up to…