Supports & Resources
KCNQ2 Family Supports and Resources
KCNQ2 Parent Support Group
KCNQ2 Cure hosts a family support group. The families in the support groups recognize the immeasurable value of communicating and sharing experiences in a closed/confidential setting. By sharing our stories, we pass on information relating to the diagnosis, treatments, medications, and research. The families in the group provide comfort, support, strength, and love when you need them most.
If you are the parent of someone affected by KCNQ2 developmental and epileptic encephalopathy, you may request to join by following the steps below:
- Request to join our Support Group on Facebook (you must have a Facebook account to proceed).
- If you do not receive an approval notice on Facebook within 5 business days check your email spam folder and then send us a message.
- We may require additional information to process your request.