Supports & Resources

KCNQ2 Family Supports and Resources

KCNQ2 Global Support Network

KCNQ2 Conference-150

KCNQ2 Cure hosts a caregiver support group. The families in the support groups recognize the immeasurable value of communicating and sharing experiences in a closed/confidential setting. By sharing our stories, we pass on valuable information related to diagnosis, treatments, medications, and ongoing research. The families in the group provide comfort, support, strength, and love when you need them most.

If you are the caregiver of someone affected by KCNQ2-related encephalopathy, you may request to join by following the steps below:

  • Request to join our Support Group on Facebook (you must have a Facebook account to proceed).
  • Fill out the form below to request to join the KCNQ2 Global Support Network and agree to the Terms of Use.
  • If you do not receive an approval notice on Facebook within 5 business days, check your email spam folder and send us a message.

Parent Support Group

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  • To protect our online community, a genetic report or hospital document is required. All information is secured.
    Max. file size: 50 MB.
  • You will receive an email in a few hours from (community.support@kcnq2cure.org) as one of our group moderators will respond to your application. Please check your SPAM folder. A response to this email is REQUIRED to be approved for the KCNQ2 Parent Group.

Resource Downloads

Printable KCNQ2 Brochure