KCNQ2 developmental and epileptic encephalopathy does not discriminate by ethnicity. The disease occurs with equal frequency throughout the world. We work in close collaboration with regional organizations throughout the globe, sharing our mission to improve the lives of those living with KCNQ2.
These organizations help support and engage families in their region, organize fundraising and awareness initiatives, and fund research, all in collaboration with our international organization. We invite anyone interested in partnering to form a regional KCNQ2 organization to reach out to us via email info@KCNQ2cure.org
KCNQ2 e.V. (Germany)
KCNQ2 e.V. is a registered non-profit association. Our aim is to make the clinical picture of KCNQ2 better known in Germany and to support those affected with up-to-date information regarding KCNQ2. Together with doctors and affected families, we will fight for a better future for children suffering from the disease and their families. Our aim is to create a well-founded base of information and action, to make information about KCNQ2 available to the public, to support research in this area and especially to address those who are often overwhelmed by the diagnosis of KCNQ2 in the difficult early days.
European KCNQ2 Association (Italy)
The European KCNQ2 Association (EKA) was born from the collaboration of seven Italian members, mothers, and fathers of children carrying the KCNQ2 genetic modification and/or suffering from rare epilepsies, with the aim of becoming the reference point in Europe in support of projects, research, and to support initiatives and information for families.
Asociación KCNQ2 España (Spain)
Asociación KCNQ2 España was created to find a solution or treatment for patients affected by Epileptic Encephalopathy due to a mutation in the KCNQ2 gene.
Their main objective is to support research to find an improvement and/or cure of this genetic disease, to gather the greatest number of affected and to make known the disease, its characteristics, and needs of those affected.
KCNQ2 Downunder (Australia and New Zealand)
KCNQ2 Downunder is an Australian/New Zealand branch of the KCNQ2 Cure Alliance. Our Australian branch hosts an annual fundraiser, New Horizons in Science, which raises fund to support international research.
KCNQ2 FRANCE DEVELOPPEMENT is a non-profit association whose objective is to participate in the information and improvement of the care of individuals and families of people with developmental disorders related to the KCNQ2 gene.
Support research, bring together families and associations to represent at the national level, promote exchanges and orientation towards the Expert Center for Rare Diseases.
The association strives to implement all means and activities that can support and participate in all activities or structures related to KCNQ2.
China KCNQ2 Association is a non-profit organization dedicated to the recruitment of KCNQ2--potassium channel disease. KCNQ2 encephalopathy is a rare and catastrophic disease from the first day of life. By providing research funding for KCNQ2 research in a novel way, we can help researchers and their families advance the research and the medical community to find better treatments.
Designed to help families, medical professionals and organizations work together to find treatments for KCNQ2-potassium channel lesions.