Global Reach

KCNQ2 developmental and epileptic encephalopathy does not discriminate by ethnicity. The disease occurs with equal frequency throughout the world. We work in close collaboration with regional organizations throughout the globe, sharing our mission to improve the lives of those living with KCNQ2.


These organizations help support and engage families in their region, organize fundraising and awareness initiatives, and fund research, all in collaboration with our international organization. We invite anyone interested in partnering to form a regional KCNQ2 organization to reach out to us via email

KCNQ2 e.V. (Germany)

KCNQ2 e.V. is a registered non-profit association. Our aim is to make the clinical picture of KCNQ2 better known in Germany and to support those affected with up-to-date information regarding KCNQ2. Together with doctors and affected families, we will fight for a better future for children suffering from the disease and their families. Our aim is to create a well-founded base of information and action, to make information about KCNQ2 available to the public, to support research in this area and especially to address those who are often overwhelmed by the diagnosis of KCNQ2 in the difficult early days.

Asociación KCNQ2 España (Spain)

Asociación KCNQ2 España was created to find a solution or treatment for patients affected by Epileptic Encephalopathy due to a mutation in the KCNQ2 gene.

Their main objective is to support research to find an improvement and/or cure of this genetic disease, to gather the greatest number of affected and to make known the disease, its characteristics, and needs of those affected. (China)

China KCNQ2 Association is a non-profit organization dedicated to the recruitment of KCNQ2--potassium channel disease. KCNQ2 encephalopathy is a rare and catastrophic disease from the first day of life. By providing research funding for KCNQ2 research in a novel way, we can help researchers and their families advance the research and the medical community to find better treatments.

Designed to help families, medical professionals and organizations work together to find treatments for KCNQ2-potassium channel lesions.

KCNQ2 Downunder (Australia and New Zealand)

kcnq2 australia

KCNQ2 Downunder is an Australian/New Zealand branch of the KCNQ2 Cure Alliance. Our Australian branch hosts an annual fundraiser, New Horizons in Science, which raises fund to support international research.

KCNQ2 France