Patient Assistance Grants


The KCA Patient Assistance Grant program provides financial support for necessary medical equipment, therapy devices, and educational tools for individuals with KCNQ2-related encephalopathy not covered by private insurance or other programs. It is accessible globally to anyone with a confirmed diagnosis of a KCNQ2-related encephalopathy variant. The application period begins annually on March 2nd on International KCNQ2 Awareness Day and ends on December 1st or when funding is exhausted.

Applications are processed on a first-come, first-served basis. Each applicant is eligible to apply once per funding period, with a cap of $1,500 annually and a lifetime limit of $5,000.


  • Durable medical goods (such as wheelchairs, orthotics, cooling vests, etc.)
  • Therapy equipment
  • Therapies not covered by insurance (such as therapeutic horseback riding, aquatic therapy, etc)
  • Communication devices, such as iPads

The program does not cover medical or pharmaceutical co-pays, respite assistance, or service animals.

If you are applying for an iPad, please note  the PAG program only covers either an iPad (128GB, Wi-Fi only) or an iPad mini (256GB, Wi-Fi only). If you were granted funding for an iPad previously, there is a 3-year minimum before you may reapply for a new one. We do not provide AppleCare insurance, but you may add it later at your own cost. We highly suggest you purchase a durable cover or add it to your application to help protect the device.

If the equipment you are interested in is not listed above or you are requesting more than 3 items, please contact us with more details on the requested item, and we can review its eligibility.


Your application should contain:

  • A filled-out application form
  • A recent letter from a physician or healthcare provider detailing the medical need for your request
  • A recent letter from a neurologist or geneticist confirming the diagnosis of KCNQ2-related encephalopathy
  • If applicable, a denial letter from your insurance company for the requested items or services
  • Any other relevant documents related to your request. Privacy of all submitted information is assured.

Incomplete applications, or those lacking required additional information, will be put on hold until completed. Applications not completed within 60 days will be considered expired. All applicants will be notified via email regarding the outcome of their application. Those who are denied can reapply if they provide new documentation showing a change in their situation or the ineffectiveness of other alternatives. The review process for applications can take up to 45 days.

Questions or need help? Email 

Application for Caregivers

Have you previously applied for a grant from the KCNQ2 Cure Alliance?(Required)
MM slash DD slash YYYY
(include primary and secondary, if applicable)
(Provide exact name of equipment/service; name of manufacturer or provider; and the name and contact information for the vendor. If available, please attach brochure and/or photos. If you are requesting more than 3 items, please contact KCA prior to submission.)
Please research the cost of your item(s) before submitting your application. An estimated cost must be entered, or your application will be rejected.
Max. file size: 50 MB.
Max. file size: 50 MB.
Max. file size: 50 MB.
Max. file size: 50 MB.