KCNQ2 CURE PATIENT ASSISTANCE GRANT
KCNQ2 Cure has received a $10K donation in memory of Raz, an early member of this KCNQ2 group, who passed away in 2017 at the age of four. His family wants to honor his memory by helping fellow KCNQ2 families in need of some assistance in caring for their children.
Items that are currently covered in part or in full under this program include:
- Durable medical goods (such as wheelchairs, orthotics, cooling vests, etc.)
- Communication devices such as iPads or communication apps
- Therapy equipment
- Seizure monitors
The program does not cover medical co-pays, therapy costs, respite assistance, or monies towards service animals.
If you are applying for an iPad, please note the PAG program only covers either an iPad (128GB, wifi only) or an iPad mini (256GB, wifi only). We do not provide AppleCare insurance, but you may choose to add it later at your own cost. We highly suggest that you procure a durable cover or add it to your application to help protect the device.
If the equipment you are interested in is not listed above or you are requesting more than 3 items, please contact us with more details on the requested item and we can review its eligibility.
When funds are depleted, the program will be closed. Applications will be reviewed and approved on a first-come, first-served basis. An applicant may apply once for up to $1,000.
Your application packet should include the following documentation:
- Completed application
- A recent letter from the child’s physician or health care professional explaining the medical necessity of your request
- A letter of denial from the insurance provider stating that the requested equipment and/or service was denied (when possible)
- Any other documentation pertaining to the nature of your request. All information is kept confidential.
Applications that are incomplete or missing requested additional information will not be placed in queue for review until complete. All applicants will receive an email stating approval or denial of their application. Denied applicants wishing to re-apply must provide additional documentation of a change of status in circumstances or that other alternatives have failed. We request up to 45 days to review your application.
By awarding these grants, KCNQ2 Cure Alliance is making no recommendation to the appropriateness or safety of a particular piece of equipment or therapy in treating KCNQ2 and associated epilepsies and conditions. KCNQ2 Cure and its Board of Directors are not responsible for the safety and use of awarded equipment or therapies. Applicants are strongly urged to consult with their medical professionals and therapists regarding equipment and therapies that would be most beneficial for their situation. We will not divulge application information without written consent from the applicant or their legal guardian. We do ask that award recipients submit a photo showing the child using their equipment or therapy that we may use for the advertising purposes of this grant program. Children will only be identified by their first name and only with the written consent of their guardian.
For questions on this program, please email Scotty