Our Stories

Share A Loved Ones Journey

We welcome parents, caregivers, those who have lost a loved one, and healthcare professionals to share their stories with the KCNQ2 community.

Our goal is to help others understand the impact of KCNQ2 and engage with individuals who may be interested in joining our efforts.

Click here to complete our story submission form.

Our Stories

Learning that a child you love has KCNQ2 can be a difficult and isolating experience. Even the doctor telling you may be completely unfamiliar with what the diagnosis means. This is where the KCNQ2 family comes in. Below learn about the incredible bravery and strength of our KCNQ2 children. Please consider submitting the story of your own child's journey. We are all constantly learning from one another.