Our Stories

Below are some of the stories of those with KCNQ2. Most have a similar beginning, but their overall journeys are vastly different. By sharing our stories we hope to bring awareness and attention to the devastation caused by KCNQ2.



KCNQ2 Warriors

eric

Ireland
emma

North Caroliana
harper

Colorado
sadie

Alabama
james

California
Nolan

New Jersey
ella

Missouri
madison

California
faith

Minnesota
afton

Rhode Island
Regan

Georgia
kiara

Australia

California


 



Sibling Stories

amelia

California