Stories of Strength from the KCNQ2 Community
KCNQ2 affects children around the world, and every family's path looks a little different. Here you'll find honest accounts from the parents, caregivers, and loved ones who live it every day — and who refuse to stop fighting for a better future.
Carlo’s Story
Nicole and Paul Cercone’s son Carlo was born in New York on July 10, 2019, at 4:05 am. Their elation turned to alarm when little Carlo didn’t make a sound,…
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Joel the strong-willed
Joel was born on February 6th, 2019. He came into the world crying, and everything was going perfectly. A few hours after birth, I noticed Joel would hold his breath…
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Beauregard’s Story
Growing Pains Beauregard (Bobo for short) is always happy, clowning around, a very down to earth child. Myself, family, and teachers noticed he was significantly behind his peers. Walking started…
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Egor’s Story
Egor was born in July 2016. He was poorly, slept almost constantly, and somehow strangely shuddered and strained. Doctors said that everything was fine. On the sixth day, he began…
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Peyton’s story
Our KCNQ2 BFNE journey Peyton was born on Oct 15, 2016 via C-section. He was a beautiful baby, comparable to a doll. After his first cry, he fell silent. We…
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Zayn’s Story
Zayn is our darling, 1-year-old boy. His eyes are always seeking and his laughter is rambunctious. He has no idea of the challenges he has overcome. A few days after…
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