Our Role

Mission & Vision

The mission of the KCNQ2 Cure Alliance is to empower through education, nurture meaningful connections, and drive innovative research to develop treatments or find a cure for individuals affected by KCNQ2-related disorders.


The vision of the KCNQ2 Cure is a world in which every individual affected by KCNQ2-related disorders, along with their caregivers, researchers, and clinicians, has readily available care, a supportive community, and ample resources. The ultimate aim is to transform the trajectory of this disease, working towards enhanced treatments and, ultimately, the discovery of a cure.

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About Us

KCNQ2 Cure Alliance provides support for those whose loved ones are diagnosed with KCNQ2 developmental and epileptic encephalopathy, while working with medical and scientific experts, biopharmaceutical companies, our scientific advisory board and our board of directors to advance treatments that could improve the lives of KCNQ2 patients.

KCNQ2 Cure Alliance is a 501(c)3 non-profit organization (EIN #47-1810644). All donations are tax-deductible to the extent the law allows. All donations will receive an acknowledgment letter to be used as a receipt of your donation.

You can read our privacy policy here.

Financial Statements

Letter of Determination for 501(c)(3)

2018 990 IRS Statement

2018 Financial Audit

We take our responsibility to our donors and supporters seriously, and are extremely conscientious with the donations entrusted to our care. We are a 100% volunteer-run organization, allowing KCNQ2 Cure to maximize our donors’ contributions to what matters most: research!