KCNQ2 Cure Alliance established KCNQ2 Awareness Week in 2015 as another important platform to elevate the message of need and hope for everyone touched by the condition.
KCNQ2 Awareness week, March 1st-7th annually, is a virtual event aimed at raising awareness, education, and advocacy for the international community affected by KCNQ2 Epilepsy.
We have come so far in the past few years from a small community of passionate families to a vibrant community driving important precision medicine initiatives for our uncommon disease. In the recent past, we have helped establish an international collaboration collecting and curating variant data, sponsored mouse model research at the leading lab in the world, moved into testing existing compounds against human cell models with partners and greatly expanded academic research efforts and pharmaceutical company interest through our annual summit.
Much remains to be done and relies on the contributions of the entire community.
Things To Do This Week
Get Your Facts Straight
One of the best ways to spread awareness about KCNQ2 epilepsy is to educate others about the impact of this devastating disease. Annually the first week of March, KCNQ2 Cure Alliance launches “Get your Facts Straight” on Facebook, Twitter, and Instagram. This campaign shares two KCNQ2 facts each day.
Help us spread the message far by liking, sharing, re-tweeting, and commenting on the 14 facts. View our facts here.
Share Your Story
Sharing your story with KCNQ2 Cure Alliance is a powerful way to spread awareness. We hope to share 7 stories during awareness week, one story every day. We invite you to share your story in honor of your loved one with KCNQ2 epilepsy.
Click here to share your story.
Make it Official: Get A Proclamation
Declare the first week of March KCNQ2 Awareness Week in your city or state. Fill in our proclamation template and submit it to your elected official for a signature and official declaration. Then share your proclamation on social media, send it to your local newspaper, and email us to let us know about your accomplishment.
Download the KCNQ2 Awareness Week toolkit here!
Personalize your social media profile
Download our KCNQ2 Cure Awareness Week Facebook profile picture here. Then, make a status update about why you support KCNQ2 Awareness Week. Be sure to make your status update public and use the hashtag, #KCNQ2strong so that everyone can see it!
Host or Attend an Event
Events are a great way to raise awareness about KCNQ2 epilepsy. Here are a few fundraising ideas that you can try:
If you’ve never planned an event before and you’re not sure how to start, we are here to help. Download our fundraising toolkit.
What Else Can I Do?
Ditch your lunch. Choose one day to skip your lunch in honor of your loved one with KCNQ2. Ask your friends, family, and co-workers to join you and donate what they would have spent on lunch to KCNQ2 research.
Educate. Give a presentation at your child’s school or a group you belong to!
Enroll in research studies to help promote research.
We are here to support any other activities you would like to initiate during Awareness Week and beyond!