Stories of Strength from the KCNQ2 Community
KCNQ2 affects children around the world, and every family's path looks a little different. Here you'll find honest accounts from the parents, caregivers, and loved ones who live it every day — and who refuse to stop fighting for a better future.
Scotty Sims, Executive Director and co-founder of the KCNQ2 Cure Alliance, was featured in The Story Collider through the Chan Zuckerberg Initiative (CZI) Rare As One program. In her story, “She Is Nesba,” Scotty reflects on her daughter Harper’s journey with KCNQ2-DEE and how that experience inspired the creation of a global community dedicated to support, advocacy, and research for KCNQ2-related disorders.