Stories of Strength from the KCNQ2 Community
KCNQ2 affects children around the world, and every family's path looks a little different. Here you'll find honest accounts from the parents, caregivers, and loved ones who live it every day — and who refuse to stop fighting for a better future.
Kiara’s Story
Kiara is our first born child born in April 2012. We were so excited to be having a baby & even more so to find out we were having a…
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Regan’s Story
My son was born via C Section on October 18th, 2017. Everything seemed ok, but I did notice that he would get red and stiff for a few seconds, then…
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Amelia’s Story
My Brother James (by Amelia, age 12) Most people when they find out that my brother has a disability tell me how sorry they are, and how sad that is…
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Afton’s Story
Afton was born Aug. 17th, 2015 weighing 8 lbs 12 oz – beautiful and perfect. When she was two days old, and 5 hours after leaving the hospital, Afton had…
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Nina’s Story
We first notice our daughter´s spasms the week she turned 14 months old. They come in clusters and we didn´t get too much concerned until it gets frequent, after almost…
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Faith’s Story
Faith is a spunky, humorous and loving child who is curious and full of laughter. She is nonverbal but uses a dynavox, cards, and gestures to tell us what she…
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