KCNQ2 Family & Research Summit
The KCNQ2 Family & Research Summit is held every two years and brings together the people who matter most in the KCNQ2 community — families living with the diagnosis, leading neurologists and geneticists, and researchers working toward treatments and a cure.
Held over three days in a hybrid format, the Summit creates a rare space for honest conversation, the latest science, and the kind of human connection that only comes from being in a room — or on a screen — with people who truly understand.
Research Roundtable
Professionals only
Leading clinicians and researchers convene for a focused day of scientific exchange — sharing findings, aligning on priorities, and shaping the KCNQ2 research agenda.
Together
Families & Professionals
The heart of the Summit. Expert panels, research updates, and open dialogue between the families living with KCNQ2 and the clinicians and scientists working to help them.
Family Focus
Families & Professionals
Practical sessions, lived experience sharing, and meaningful connection — built around what families need most, including caregiver support, school and care strategies, and participation in research.
What you'll experience
- Keynotes and panels from leading KCNQ2 researchers and clinicians
- Family stories and lived experience from across the KCNQ2 community
- Research updates and clinical trial news
- Opportunities to participate directly in research
- Caregiver and sibling support sessions
- Connection with families from around the world
What you'll experience
- Keynotes and panels from leading KCNQ2 researchers and clinicians
- Family stories and lived experience from across the KCNQ2 community
- Research updates and clinical trial news
- Opportunities to participate directly in research
- Caregiver and sibling support sessions
- Connection with families from around the world
What Attendees Say. . .
What attendees say
Research Roundtable
On Day 1 of the Summit, KCNQ2 Cure Alliance hosts an invitation-only Research Roundtable for clinicians, geneticists, and researchers. This focused session drives alignment on research priorities, shares emerging findings, and strengthens the collaborative network working toward treatments and a cure. Learn more about how our research agenda is shaped on our Research Roadmap page.
Past Summits
Missed a Summit or want to revisit a session? All past Summit recordings are available on our YouTube Channel.