every two years · in person & online
Where the KCNQ2 community finds its people.
The KCNQ2 Family & Research Summit brings families, clinicians, and researchers together to share, learn, and accelerate progress toward treatments and a cure.
the next Summit
Dates and location coming soon
When the next Summit is announced, registration, the agenda, and travel details will live right here. Sign up for our newsletter and you’ll hear first.
- Every two years
- In person + virtual
- Families & professionals
- Three days
what happens there
Three ways to take part
Professionals only
Research Roundtable
Leading clinicians and researchers convene for a focused day of scientific exchange — sharing findings, aligning on priorities, and shaping the KCNQ2 research agenda.
invitation-only, Day 1
Families & professionals
Together
The heart of the Summit. Expert panels, research updates, and open dialogue between the families living with KCNQ2 and the clinicians and scientists working to help them.
the heart of it all
Families & professionals
Family Focus
Practical sessions, lived-experience sharing, and meaningful connection — caregiver support, school and care strategies, and participation in research.
built around families
What you’ll experience
- Keynotes and panels from leading KCNQ2 researchers and clinicians
- Family stories and lived experience from across the KCNQ2 community
- Research updates and clinical trial news
- Opportunities to participate directly in research
- Caregiver support and SuperSibs camp for brothers and sisters
- Connection with families from around the world
missed one? rewind
Past Summits, on demand
Every past Summit session is recorded and free to watch — keynotes, panels, family stories, and research updates.
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Our newsletter shares Summit dates, location, and registration the moment they’re announced — plus new recordings and news from across the KCNQ2 community.
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