NEWS & BLOG
Stay up to date with the latest news and updates from KCNQ2 Cure.
KCNQ2-DEE Clinical Trial
Xenon Pharmaceuticals is currently developing XEN496, which is a proprietary pediatric formulation of the active ingredient ezogabine, for the treatment of KCNQ2 developmental and epileptic encephalopathy (KCNQ2-DEE). Ezogabine was previously…
Ode to a Cure
Our KCNQ2 Cure pal Dr. Phillip Pearl is on the front lines of the battle against COVID-19. Dr. Pearl is the Director of Epilepsy and Clinical Neurophysiology at Boston Children’s…
KCNQ2 COVID-19 Emergency Relief Grant Program
KCNQ2 COVID-19 Emergency Relief Grant Program We at the KCNQ2 Cure Alliance have spent the last few months split between wrangling our own families (who knew 2020 would give us…
This is us!!
THIS IS US! I don’t often share our private battle but it’s KCNQ2 awareness week March 1-7 and I want to be a part of the movement. So what is…
How do matching gift programs work?
What is a matching gift? A matching gift is a charitable donation your company gives on your behalf. It is based on donations you’ve provided an organization. How do companies…
November is National Epilepsy Awareness Month
What is Epilepsy? Epilepsy is the general term for a variety of neurological conditions characterized by recurrent unprovoked seizures. A seizure is a brief disturbance in the electrical activity of…
KCNQ2 Cure Down Under “New Horizons” Fundraiser Breaks Record
The fourth KCNQ2 Cure New Horizons in Science Dinner smashed fundraising records for KCNQ2 Cure Down Under. The dinner in Melbourne, Australia raised $160,000 for medical research to find a…
GLOCAL – Brews for KCNQ2
On Saturday, October 19th we got a chance to celebrate our community, raise some money and awareness for KCNQ2 Cure. We hosted an event at the Silver Branch Brewing Company…
Working Together for Early Diagnosis of Rare Epilepsies
In the middle of August, I had the opportunity to spend an afternoon in Chicago meeting with a group of people from the world of rare diseases. Biomarin invited a…
KCNQ2 Cure represented at the 8th China Rare Diseases Summit
Our very own Tony Gleason recently had an opportunity to represent KCNQ2 Cure Alliance at the 8th China Rare Diseases Summit held in Shenzhen China. The summit had 18 sub-forums,…