CELEBRATE, FUNDRAISE, CHANGE LIVES

Be an advocate by fundraising, promoting awareness, and hosting your own event in service to our community.

CELEBRATE, FUNDRAISE, CHANGE LIVES

Be an advocate by fundraising, promoting awareness, and hosting your own event in service to our community.

Our work would not be possible without all the dedicated supporters who raise money and awareness for KCNQ2 Cure. Each year, our families and friends organize and participate in fundraisers that take the entire KCNQ2 community closer to a treatment and cure.

From walks, golf events, and birthday celebrations to fundraisers, our fundraising supports our research program, allowing us to provide patients and families with the information and resources they need to live active, engaged, and hopeful lives today.

There are many ways for you to fundraise and to make a difference for those affected by KCNQ2.

Create an Individual Online Fundraising Page

You can create a personal fundraising page to ask for donations instead of gifts for any special event or achievement, from birthdays, anniversaries, and graduations to walks, runs, and more.

When you’re ready to begin, fill out the fundraising interest form(opens in new tab) to get in touch with us. Then, create a personal fundraising page(opens in new tab) to share why supporting the KCNQ2 community is essential to you on this special day. Next, ask your friends and family to celebrate with you by donating to your campaign.

Tell us about your fundraising event(opens in new tab)
Create your own fundraising page(opens in new tab)
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The KCNQ2 Fundraising Handbook

Be an active supporter in the quest to cure KCNQ2-Related Disorders. Download our toolkit to launch your personal fundraising event.

Download Now(opens in new tab)
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Fundraise with Custom KCNQ2 T-Shirts

Use Bonfire as an extra way to fundraise or have custom apparel for an upcoming event. Bonfire ships the items directly to your supporters and sends the funds raised to the KCNQ2 Cure Alliance.

Social Media Fundraising

A powerful way to raise awareness and funds is by starting fundraising pages across platforms

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Facebook Campaign Page(opens in new tab)

  • Log in to your account and go to the account menu. (For app users, find the bottom-right icon with three lines, or use the scroll bar on the left side of your screen for desktop.)
  • Scroll down to Fundraisers — you may have to select See More to find it.
  • Select Fundraiser under Create in the left-hand menu
  • Click Get Started
  • Select Nonprofit and search forKCNQ2 Cure Alliance
  • Set your fundraising goal and campaign end date
  • Tell your story!
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Instagram Campaign Page(opens in new tab)

  1. Create a new post or choose an existing one:
    1. Tap the plus (+) icon at the bottom of your screen.
    2. Select a photo or video for your post.
    3. Edit the image and tap “Next”.
  2. Add the fundraiser:
    1. Tap “Add fundraiser” when you reach the details screen (where you add your caption).
    2. Search for KCNQ2 Cure Alliance
    3. Enter the fundraiser details like the goal and duration.
    4. Tap “Done”.
  3. Share the fundraiser:
    1. Share your post with the fundraiser to your feed and stories.
    2. Consider adding relevant hashtags to reach a wider audience.
    3. Your fundraiser will be visible in your post, and you’ll also find a link to it in your bio.

Important Notes:

  • Fundraisers are typically active for 30 days, but you can extend or end them at any time, according to Instagram.
  • If your profile is public, anyone can see and donate to your fundraiser.
  • If your profile is private, only your followers can see and donate.
  • You can also add a donation sticker to your stories and search for the organization to fundraise for.
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Tik Tok Campaign Page(opens in new tab)

TikTok has features that allow users to support nonprofits through donations, both on their profiles and within videos and live streams. Here’s how you can add a fundraiser to your TikTok profile:

  • Open the TikTok app and go to your profile.
  • Tap “Edit Profile”.
  • Tap “Add nonprofit to your profile”.
  • Search for and select Dravet Syndrome Foundation.
  • Tap “Add” and then “Save”.

You can also add a donation sticker to your videos and live streams, allowing viewers to donate directly while watching. To do this, tap the sticker icon when creating a video or during a live stream and select the “Support Nonprofit” sticker.