Join Our Board of Trustees - KCNQ2 Cure Alliance

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Join Our Board of Trustees

KCNQ2 Cure Alliance

Help shape the future of KCNQ2 Cure Alliance.

Board of Trustees

Meaningful progress happens when we work together.

At KCNQ2 Cure Alliance (KCA), we believe meaningful progress happens when families, researchers, healthcare professionals, and dedicated advocates work together.

We are currently seeking passionate, committed individuals to join our Board of Trustees and help guide the next chapter of our work.

Whether you have a personal connection to KCNQ2 or bring professional experience and a desire to make a difference, we welcome the opportunity to connect with you.

Email Scotty to learn more Board service at a glance

Our mission

Our mission is to empower through education, nurture meaningful connections, and drive innovative research toward better treatments and, ultimately, a cure for KCNQ2-related disorders.

Unity. Hope. Strength. Love.

Why serve on KCA’s Board?

Serving on KCA’s Board of Trustees is an opportunity to help shape the future for individuals and families affected by KCNQ2-related disorders.

As a trustee, you’ll work alongside others who share a commitment to advancing research, strengthening our community, and ensuring KCA has the leadership and resources needed to achieve its mission. Your involvement can help us:

Accelerate research

Support initiatives that advance scientific understanding, treatment development, and clinical research.

Strengthen family support

Help ensure families have access to education, resources, and meaningful connections.

Expand our reach

Build relationships with researchers, healthcare professionals, industry partners, and supporters.

Build a sustainable future

Provide strategic guidance and help secure the resources necessary to support KCA’s long-term goals.

All are welcome

Who we’re looking for

We believe a strong board brings together individuals with different experiences, perspectives, and areas of expertise.

We welcome interest from KCNQ2 parents, caregivers, and family members, as well as professionals and community leaders who may not have a personal connection to the disorder but share our commitment to making a difference.

Prior board experience is welcome but is not required. We value individuals who are collaborative, thoughtful, willing to contribute their skills, and committed to helping KCA grow.

We are particularly interested in individuals with experience in:

  • Fundraising, philanthropy, and donor engagement
  • Finance, accounting, and financial oversight
  • Law, governance, and nonprofit leadership
  • Business development, strategic planning, and organizational growth
  • Marketing, communications, and public relations
  • Healthcare, biotechnology, pharmaceuticals, and life sciences

Board member responsibilities and expectations

KCA’s Board of Trustees provides strategic leadership, financial oversight, and governance to help ensure the organization remains focused on its mission. Trustees are expected to:

Provide leadership and oversight

  • Help guide KCA’s strategic direction and long-term priorities.
  • Support responsible financial stewardship and organizational sustainability.
  • Participate in important governance and organizational decisions.

Support fundraising and development

  • Make an annual personal financial contribution to KCA.
  • Actively support fundraising efforts and help identify opportunities for financial support.
  • Leverage professional and personal networks to build relationships and increase awareness of KCA’s mission.

Be an active and engaged board member

  • Attend quarterly board meetings and come prepared to actively participate in discussions and decisions.
  • Attend the KCNQ2 Family & Research Summit and serve as an ambassador and volunteer, engaging with families, researchers, healthcare professionals, and other attendees.
  • Attendance at the annual American Epilepsy Society (AES) Annual Meeting is strongly encouraged to represent KCA, build relationships, and support outreach efforts.
  • Volunteer and actively assist with KCA’s programs, events, and fundraising initiatives.
  • Contribute time, professional expertise, and personal connections to advance KCA’s mission.
  • Participate in board committees or special initiatives as needed.

Serve as an ambassador for KCA

  • Represent the organization positively within professional and community networks.
  • Help build relationships that strengthen KCA’s programs, partnerships, and impact.
  • Uphold the organization’s values, confidentiality, and conflict-of-interest expectations.

The essentials

Board service at a glance

Term of service

Trustees generally serve three-year terms, with the opportunity for reappointment in accordance with KCA’s bylaws.

Meetings

The Board meets quarterly, with opportunities for virtual participation.

Events and engagement

Attend the KCNQ2 Family & Research Summit, volunteer at KCA programs and events, and support activities throughout the year. AES attendance is strongly encouraged.

Financial commitment

Trustees make an annual personal financial contribution and actively participate in fundraising efforts.

Compensation

Board service is voluntary and unpaid.

Interested in joining us?

You don’t need to know everything about KCNQ2 to make a meaningful difference. What matters most is a willingness to learn, collaborate, and help move our mission forward.

Contact Scotty Sims, Executive Director, to learn more.

Email [email protected]

We look forward to connecting with you!