Our Stories
Our families. Our journeys. A shared mission to find a CURE
KCNQ2 affects children around the world, and every family's path looks a little different. Here are honest accounts from the parents, caregivers, and loved ones who live it every day.
Featured story
She Is Nesba
Scotty Sims on The Story Collider
Scotty Sims, Executive Director and co-founder of the KCNQ2 Cure Alliance, was featured in The Story Collider through the Chan Zuckerberg Initiative (CZI) Rare As One program. In her story, “She Is Nesba,” Scotty reflects on her daughter Harper’s journey with KCNQ2-DEE and how that experience inspired the creation of a global community dedicated to support, advocacy, and research for KCNQ2-related disorders.