KCNQ2 Family & Research Summit 2027
The Program
A weekend paced for real families: room to gather, room to learn, room to celebrate, and room to rest.
Schedule at a Glance
Four days, at a glance.
Below is a first look at how the days unfold.
A working outline. Session times and details will be confirmed closer to the summit.
Day One Wednesday, June 23 Arrivals & Welcome
Registration
Collect your badge and, if this is your first summit, meet the family we have matched you with.
New Champions Event
A warm first gathering for families new to the community, and to the weekend.
Time to Explore
Arrivals are unhurried. Once you are checked in, the whole Mall is yours to enjoy before the weekend begins. See your attendee discounts.
Champions Welcome Reception
Evening · included with registration Details
Day Two Thursday, June 24 Talks & Connection
Talks & Sessions
Lectures on the newest KCNQ2 research and the topics families need most, made clear and easy to follow. More details to come.
Connection & Support
Time set aside to meet other families and share what you are carrying.
The Sibling Summit
The siblings get a summit of their own: two days with the run of the Mall, rides, mini-golf, and a program built entirely around them. More about the Sibling Summit.
Community Dinner
Evening · included with registration Details
Day Three Friday, June 25 Sessions & Celebration
Talks & Sessions
More research and family-focused sessions across the day.
Final Session
A last session together before the evening’s celebration.
The Sibling Summit
Day two of the siblings’ own program.
Celebration of Champions
Evening · included with registration Details
Day Four Saturday, June 26 Explore Minneapolis
Walking Tour of Minneapolis
Join a guided walk through the city, or spend the day exploring on your own.
A day to yourselves
There is no formal Summit programming on Saturday. Ideas for your Saturday.
Evening Events
Every evening, we gather to celebrate.
Wednesday, Thursday, and Friday evening events are included with your Summit registration. Every registered attendee is invited, as we celebrate the strength, hope, and resilience of our community.
Wednesday, June 23
Champions Welcome Reception
Reconnect with familiar faces and meet new families as we kick off Summit weekend with conversation, refreshments, and community.
Thursday, June 24
Community Dinner
Families, clinicians, researchers, industry partners, sponsors, therapists, and volunteers gather for an evening of great food and meaningful conversation.
Friday, June 25
Celebration of Champions
Our signature evening: dinner, music, a dance party, and a special Champion Celebration honoring the families, siblings, volunteers, researchers, clinicians, and advocates who move our mission forward. Whether it is your tenth Summit or your first, this is the night we celebrate the victories, big and small, that remind us why we keep going, together.
Sibling Summit
Siblings deserve a champion too.
The siblings get a summit of their own: two days, Thursday and Friday, with the run of the Mall, rides, mini-golf, and a program built entirely around them.
They are the ones who grew up a little faster, and who love without being asked to. For two days, the whole program is about them.
The details
- Thursday, June 24, and Friday, June 25
- Included for registered siblings
- Ages 6 to 12
- Supervision and drop-off details to come
Research Roundtable
Research Roundtable, June 23.
On Wednesday, June 23, KCNQ2 Cure Alliance hosts an invitation-only Research Roundtable for clinicians, geneticists, researchers, and industry. It is a focused session to align on research priorities, share emerging findings, and strengthen the network working toward treatments and a cure.
The conversation continues all weekend: at the talks and sessions, and at the Community Dinner, where families, clinicians, researchers, and partners share a table.
Want to take part?
Email the Summit team with your name, institution, and area of work.
Speakers & Faculty
Session details coming soon.
Leading KCNQ2 researchers and clinicians, sharing the newest science and the topics families need most, made clear and easy to follow.
Speakers and session times will be announced closer to the summit, and the full schedule will be posted on Sched, where you can build your own agenda.
Why we gather
You champion them. We champion you.
You are the one in your loved one’s corner, always. For four days, a whole community steps into yours. That exchange, the caregiver cared for, the advocate finally advocated for, is the entire reason this weekend exists.