Questions & Answers

Everyone who is part of the KCNQ2 community: parents, caregivers, grandparents, siblings, KCNQ2 Cuties (who are free to attend), extended family, clinicians, researchers, therapists, and industry partners. If KCNQ2 touches your life, there’s a place for you here.

Both. Daytime sessions share the latest research and practical topics in plain language, and every evening is a celebration: a welcome reception, a community dinner, and the Celebration of Champions with dinner, music, and dancing.

Yes. Connection is the heart of the summit. There’s dedicated time for families to meet and share, plus meals, evening events, and plenty of unstructured time.

No. Come for what works for your family, step out when you need to, and rest when you need to.

Pricing is listed on the Registration page. Registration opens January 19, 2027.

Wednesday: Welcome reception. Thursday and Friday: all sessions; breakfast, lunch, and dinner. Not included: Hotel and travel. Saturday: Walking tour

Please don’t let cost keep you home. We offer a limited number of family scholarships to help with registration and travel. Travel Scholarship.

Yes. The Sibling Summit gives brothers and sisters with a program built for them. Ages 6-12.

We don’t offer care for KCNQ2 loved ones, and they’re welcome everywhere: in sessions, at meals, and at every evening event. Many families bring an extra caregiver, nurse, or aide, and the sensory room is open throughout the summit whenever your loved one needs a quieter space.

Yes. Registration details for nurses, aides, and extra caregivers will be listed on the registration site.

Absolutely. The whole Mall is step-free, and wheelchairs, powered carts, and strollers are available to rent on site. See Accessibility & Sensory Support.

The three evening events include meals. The Mall has dozens of restaurants for every taste and diet, most just steps from the sessions.

Yes. A sensory room is open throughout the summit for anyone who needs a calmer moment.

We recommend bringing your loved one’s seizure action plan and medications. M Health Fairview Southdale Hospital 12 minutes from the Mall is the closest Emergency Room

Our discounted Summit hotel block is $189/ night + tax = $220/night. You will receive the hotel booking link in your registeration confirmation email.

We recommend booking early and requesting accessible features when you reserve.

MSP airport is just a few miles away. The light rail runs from the terminals to the Mall in about twelve minutes on fully accessible trains, and many hotels offer free shuttles.

A working outline is on The Program. The detailed schedule will be posted on Sched closer to the summit, where you can build your own agenda.

An optional guided walk through Minneapolis on Saturday, June 26. There’s no formal programming that day, so it’s yours to explore however you like.