KCNQ2 Awareness Week
UNITY. HOPE. STRENGTH. LOVE
KCNQ2 AWARENESS WEEK
UNITY. HOPE. STRENGTH. LOVE
KCNQ2 Awareness Week - March 1st-7th
KCNQ2 Awareness Week was established by KCNQ2 Cure Alliance in 2015 to elevate awareness, education, and advocacy for individuals and families affected by KCNQ2-related disorders worldwide.
Through Bonfire you can create Giving Campaigns. With our Giving Campaigns, you can use one of our designs or create your own apparel/shirt designs to help raise awareness and donations for KCNQ2.
Channeling Hope
Channeling Hope reflects the heart of KCNQ2 Awareness Week. It represents how our community transforms uncertainty, grief, and advocacy into forward momentum. Through awareness, remembrance, research, and connection, we channel hope into meaningful progress for individuals and families affected by KCNQ2-related disorders.
What Is KCNQ2 Awareness Week?
KCNQ2 Awareness Week is an annual, global initiative dedicated to raising awareness, advancing education, and strengthening advocacy for the international KCNQ2 community.
What began as a small group of passionate families has grown into a vibrant, collaborative community driving meaningful progress for a rare disorder.
Key Days During KCNQ2 Awareness Week
KCNQ2 International Awareness Day - March 2
KCNQ2 International Awareness Day, observed annually on March 2, is a global call to action. On this day, families, advocates, clinicians, and researchers come together to raise visibility, share stories, and educate the world about KCNQ2-related disorders.
This day is dedicated to amplifying our collective voice and ensuring KCNQ2 remains part of the broader rare disease conversation.
KCNQ2 Remembrance Day – March 5
At the heart of Awareness Week is KCNQ2 Remembrance Day, a day dedicated to honoring and remembering the children and individuals lost to KCNQ2-related disorders.
This is a time for reflection, unity, and compassion, and a reminder of why we continue to channel hope into action, research, and support for families worldwide.
Why Awareness Matters
Together, our community has helped move KCNQ2 research and collaboration forward in meaningful ways.
- Helped establish international collaboration to collect and curate KCNQ2 variant data
- Sponsored groundbreaking mouse model research at a world-leading laboratory
- Advanced testing of existing compounds using human cell models through strategic partnerships
- Expanded academic research and increased pharmaceutical industry engagement through our Summit
These milestones reflect meaningful progress toward precision medicine and improved outcomes for individuals living with KCNQ2-related disorders.
Channel Hope. Share Your Story.
Every story matters. Sharing your experience helps raise awareness, foster connection, and remind families they are not alone. Whether you are a parent, caregiver, individual living with KCNQ2-related disorders, or supporter, your voice helps move this community forward.
More Than a Week. A Movement.
While we are proud of how far we have come, much work remains. Continued progress depends on the collective efforts of families, researchers, clinicians, industry partners, and advocates around the world.
KCNQ2 Awareness Week is more than a moment. It is a movement. Together, we channel hope forward toward a future filled with understanding, innovation, and lasting impact.
Advocacy Toolkit
Use our advocacy tools to help spread awareness and take action during the first week of March. You can utilize our KCNQ2 Facts graphics and more! Click here to access the toolkit.
Spread Awareness
Follow us on all of our social media channels to like and share our daily posts to help raise awareness! Tag KCA and use the hashtags #CUREkcnq2 #kcnq2CURE and #kcnq2STRONG
Participate in Fundraising
Join us in raising public awareness of KCNQ2 related-disorders. Download our fundraising handbook and set up a personal fundraising page #cureKCNQ2
Remembrance Day
Our KCNQ2 Remembrance Day takes place on March 5th and is a time for our community to reflect and remember those who we have lost to KCNQ2 related-disorders. Submit your loved one’s name here for inclusion on our virtual Remembrance Wall. #KCNQ2remembranceday
Social Media Profile Picture
Create your custom social media profile picture to raise awareness! Use your profile picture to show support for KCA during KCNQ2 Awareness Week. Click here for details on customizing your profile picture.
International Awareness Day
On March 2nd, we are joining our advocacy partners and families from around the world in raising awareness of KCNQ2 International Awareness Day. Consider sharing your story, contacting your legislator, requesting a proclamation, or hosting an awareness event. #kcnq2awarenessday