KCA's Provider Referral Program is designed to connect families affected by KCNQ2-related disorders with valuable community resources, support, and providers who treat KRD's.
Practice / Organization:
Website: https://www.austin.org.au/childrens-epilepsy/
Phone:
Email:
Short Description:
KCNQ2 Experience / Notes:
Street Address: 145 Studley Road
City: Heidelberg State: VIC ZIP Code: 3084
Accepting New Patients: 1
Telehealth Available:
Executive Director
Before her career as a crisis therapist, where she provided support and assessment to children and adults with severe and persistent mental illness, Scotty served as a forensic interviewer, trained to work with children who were victims of sexual abuse for multidisciplinary teams and the court system. Drawn to helping others, she found purpose in roles that allowed her to support people facing significant challenges. After her daughter was born and diagnosed with KCNQ2-DEE, Scotty identified a lack of support systems and resources for caregivers of those with KCNQ2-related disorders. This led her to create the international KCNQ2 caregiver support group. Through this group, she met other families who shared a vision for support and advocacy, leading to the first KCNQ2 Summit in Colorado, which brought together families, clinicians, researchers, and industry stakeholders. Recognizing the need for ongoing resources and research funding, Scotty co-founded the KCNQ2 Cure Alliance. Scotty lives in Colorado with her husband and two children.