Terms & Conditions

Last updated: June 14, 2022

1. Introduction

These Terms and Conditions apply to this website and to the transactions related to our programs, resources, and services. You may be bound by additional agreements related to your relationship with KCNQ2 Cure Alliance or any products or services that you receive from us. If any provisions of additional agreements conflict with these Terms, the provisions of the additional agreements will control and prevail.

2. Binding Agreement

By registering with, accessing, or otherwise using this website, you agree to be bound by these Terms and Conditions. The mere use of this website implies knowledge and acceptance of these Terms. In some cases, we may also ask you to explicitly agree.

3. Electronic Communications

By using this website or communicating with us by electronic means, you agree and acknowledge that we may communicate with you electronically via the website or email, and that such communications satisfy any legal requirement that they be in writing.

4. Intellectual Property

KCNQ2 Cure Alliance or its licensors own and control all copyright and other intellectual property rights in this website and the content made available through it.

4.1 Rights Reserved

Unless otherwise stated, you are not granted any license or rights to copy, reproduce, distribute, modify, publish, transmit, monetize, sell, or commercially exploit any content on this website without prior written permission, except as permitted by applicable law.

5. Newsletter

You may forward our newsletter in electronic form to others who may be interested in our mission or website.

6. Third-Party Property

This website may contain links to third-party websites. We do not monitor or review the content of those websites and are not responsible for their content, services, or privacy practices. Use of third-party websites is at your own risk.

7. Responsible Use

By visiting our website, you agree to use it only for lawful purposes and in accordance with these Terms, applicable laws, and generally accepted online practices. You must not use this website to distribute malicious software, conduct automated data collection, or engage in any activity that interferes with the performance or accessibility of the website.

8. Registration

If you register for an account, you are responsible for maintaining the confidentiality of your login credentials and for all activity under your account. You must notify us immediately if you become aware of unauthorized access. After termination, you may not create a new account without our permission.

9. Idea Submission

Do not submit ideas, inventions, works of authorship, or other intellectual property unless a written agreement or nondisclosure agreement is in place. If you submit such content without an agreement, you grant KCNQ2 Cure Alliance a worldwide, irrevocable, non-exclusive, royalty-free license to use, reproduce, store, adapt, publish, translate, and distribute the content in any medium.

10. Termination of Use

We may modify, suspend, or discontinue access to the website or any services at any time, temporarily or permanently, without liability. You agree that we are not responsible for loss of content, access, or features resulting from such actions.

11. Warranties and Liability

This website and its content are provided on an “as is” and “as available” basis. We disclaim all warranties, express or implied, including accuracy, availability, or fitness for a particular purpose.

Nothing on this website constitutes medical, legal, or financial advice. You should consult appropriate professionals for advice specific to your situation.

To the maximum extent permitted by law, KCNQ2 Cure Alliance will not be liable for any direct or indirect damages arising from your use of the website, including loss of data, revenue, or property.

12. Privacy and Data Protection

KCNQ2 Cure Alliance is committed to protecting your privacy and handling personal information responsibly and transparently.

To access certain areas of the website or participate in programs, you may be asked to provide personal information, including contact details or health-related information submitted voluntarily through forms. You agree that any information you provide will be accurate, current, and complete.

We collect and use personal information solely for purposes consistent with our nonprofit mission, including:

• Providing services, resources, and communications you request
• Supporting patient and family engagement
• Advancing research infrastructure, education, and advocacy
• Meeting legal, regulatory, and reporting obligations

Patient-reported or health-related data is handled with heightened care and access is limited to authorized personnel only. Such data may be shared in de-identified or aggregated form with research partners or platforms, including Citizen Health, for research and scientific purposes consistent with our mission and applicable agreements.

We do not sell personal information. We do not use personal data for unsolicited marketing. Communications sent by KCNQ2 Cure Alliance are related to our programs, services, events, or organizational updates.

Data is stored electronically using secure, access-controlled systems. While no system can guarantee absolute security, we implement reasonable administrative and technical safeguards appropriate to the nature of the data we collect.

Additional details regarding data collection, use, storage, and sharing are described in our Privacy Policy, which are incorporated into these Terms by reference.

13. Accessibility

We are committed to making our website accessible to individuals with disabilities. If you experience difficulty accessing content, please contact us with a description of the issue so we may address it where feasible.

14. Legal Compliance

You may not use this website in violation of applicable laws or regulations, including United States export laws.

15. Assignment

You may not assign, transfer, or subcontract your rights or obligations under these Terms without prior written consent.

16. Breaches of These Terms

If you violate these Terms, we may take appropriate action, including suspending access to the website or pursuing legal remedies.

17. Force Majeure

Neither party will be liable for failure or delay in performance due to causes beyond reasonable control, except for obligations to pay money.

18. Indemnification

You agree to indemnify and hold harmless KCNQ2 Cure Alliance from claims, damages, losses, and expenses arising from your violation of these Terms or applicable laws.

19. Waiver

Failure to enforce any provision of these Terms does not constitute a waiver of that provision.

20. Language

These Terms and Conditions are governed and interpreted exclusively in English.

21. Entire Agreement

These Terms and Conditions, together with our Privacy Policy, constitute the entire agreement between you and KCNQ2 Cure Alliance regarding your use of this website and related services, and supersede any prior agreements or understandings.

22. Updates to These Terms

We may update these Terms from time to time. Continued use of the website following changes constitutes acceptance of the revised Terms.

23. Choice of Law and Jurisdiction

These Terms are governed by the laws of the United States. Any disputes shall be subject to the jurisdiction of the United States courts.

24. Contact Information

This website is owned and operated by KCNQ2 Cure Alliance.

Email: info@kcnq2cure.org
Mailing Address:
3700 Quebec St Unit 100-118
Denver, CO 80207