As part of our partnership with CombinedBrain, we are sharing a pilot study with our community.

We are conducting a pilot study for our ORTAS toileting survey!

What: A 30-minute online survey consisting of questions about a person’s diagnosis, symptoms, treatments, and ability to toilet independently, or not. Any level of ability is welcome to participate.

Why: Toileting abilities are reported by families to be one of the most important aspects of daily living affected by neurodevelopmental disorders. This pilot study is for the purpose of testing a survey that will measure toileting abilities as an outcome measure.

Where: Remote, International (English only)

Who: We need a total of 200 participants to serve as beta testers for this survey, including individuals with neurogenetic disorders and their siblings. We need:

• Caregivers of a person (of any age) with a NEE
• Caregivers of neurotypical children (age 1 – 6) as controls
• Adults with a neurodevelopmental disorder (NDD)

How: If you are interested in helping to test this survey, please email ORTAS@combinedbrain.org

More Information: Flyer