Careers

Company Overview

The KCNQ2 Cure Alliance is a nonprofit organization whose mission is to improve the lives of those affected by KCNQ2-related disorders, a rare genetic condition involving seizures, global developmental delay, and intellectual disability. We foster collaboration among researchers, clinicians, families, and advocates to advance research, improve care, and raise awareness about KCNQ2-related disorders.

Through collaboration with scientists, medical professionals, industry partners, and families worldwide, KCNQ2 Cure Alliance works to accelerate progress toward better treatments and improved quality of life for those affected by this condition.

Position Overview

KCNQ2 Cure Alliance seeks a part-time Development Manager to help strengthen and expand the organization’s fundraising efforts, with a primary focus on building and growing a Major Gift Giving Program and supporting annual individual giving campaigns.

The Development Manager will play an important role in cultivating relationships with individual donors, coordinating targeted appeals, and supporting donor stewardship efforts. Working closely with the Executive Director, Director of Communications, and Program Manager, this role will help implement strategies that expand the organization’s base of support and strengthen long-term sustainability. Additional fundraising opportunities may include corporate giving, donor-advised funds, and grants as capacity allows.

This position is ideal for a hands-on development professional who enjoys both strategic thinking and day-to-day fundraising execution.

This is a new position within the organization, offering the opportunity to help shape and grow the fundraising program as KCNQ2 Cure Alliance continues to expand its work.

This role is structured as a part-time contractor position (approximately 20 hours per week) and is open to candidates based in the United States. The position is fully remote with a flexible schedule. Occasional evening or weekend work may be required for major campaigns or events, and limited travel may occur for conferences, donor meetings, or community gatherings.

As the organization grows, there may be opportunities for the role to expand.

 

Role and Responsibilities

• Strategy and Planning

Collaborate with the Executive Director and Program Manager to support and implement development strategies that align with organizational priorities and financial sustainability.

• Development Plan Implementation

Help manage and implement KCNQ2 Cure’s fundraising plan, executing day-to-day fundraising activities while identifying opportunities to strengthen and expand development efforts.

• Major Gift Program

Support the development and growth of the organization’s Major Gift Giving Program by helping identify, cultivate, solicit, and steward individual donors in partnership with the Executive Director.

• Annual Giving Campaigns

Plan and help execute annual appeals and campaigns designed to engage and grow the base of individual donors. Work with the Director of Communications and Program Manager on segmentation, messaging, and follow-up.

• Peer-to-Peer Fundraising

Develop and support peer-to-peer fundraising initiatives, equipping volunteers and community members with tools and guidance to expand KCNQ2 Cure’s reach and donor base.

• Donor Stewardship

Build and maintain strong relationships with donors through thoughtful communication, recognition, and engagement opportunities that deepen their connection to the organization’s mission.

• Data Management

Maintain accurate donor records, track fundraising progress, and ensure effective use of the organization’s CRM (Bloomerang/Qgiv).

• Additional Fundraising Opportunities

Support additional fundraising initiatives such as corporate partnerships, donor-advised funds, and grants as capacity allows.

Collaboration

Work closely with the Executive Director and Director of Communications to align messaging, campaigns, and donor communications across platforms.

Qualifications

• 3–5 years of experience in nonprofit fundraising, with exposure to multiple fundraising channels such as annual giving, major gifts, events, or peer-to-peer campaigns
• Demonstrated ability to support or manage successful annual giving campaigns and donor engagement initiatives
• Ability to work independently while collaborating effectively with organizational leadership
• Experience supporting major gift cultivation and helping position leadership for donor conversations
• Experience working with donor databases or CRMs such as Bloomerang and Qgiv
• Strong written and verbal communication skills with the ability to craft compelling donor messaging
• Organized, proactive, and comfortable managing multiple fundraising activities in a small team environment
• Experience working in a small nonprofit or startup environment is a plus

Most importantly, we are seeking someone who is mission-driven and excited to help improve the lives of individuals and families impacted by KCNQ2-related disorders.

Compensation

This is a part-time contractor position (approximately 20 hours per week).

Compensation is expected to range from $40–$55 per hour, commensurate with experience

Opportunity

This position offers the opportunity to help build and strengthen a growing fundraising program within a collaborative and mission-driven organization. The Development Manager will play an important role in supporting financial sustainability and enabling continued progress in research, awareness, and family support for individuals and families affected by KCNQ2-related disorders.