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Summit
Reflections from the 2025 KCNQ2 Cure Summit in Philadelphia
From September 26th to 28th, 162 members of the KCNQ2 community came together in Philadelphia for our 8th Family and Professional Summit. Attendees traveled from 22 states and six countries, joined by more than 30 researchers, clinicians, and industry partners. We were thrilled to welcome over 20 first-time families, nearly 20 KCNQ2 Cuties, and a…
Building Momentum: Insights from the KCNQ2 Research Roundtable
At this year’s KCNQ2 Cure Alliance Family and Professional Summit, Drs. Brooke Babineau and Alfred George brought together leaders from the scientific, clinical, and patient advocacy communities for a Research Roundtable. The goal was to shed light on emerging discoveries in KCNQ2-related disorders while underscoring the ongoing challenges in identifying effective treatments. We left the…
Gold Stars
A huge shout out to all our friends in the KCNQ2 Community for making the 2021 KCNQ2 Cure Virtual Summit such a smashing success. We are thrilled so many of you could participate live on Friday and Saturday, October 15 and 16. We’re excited to report that we had 125 people join our summit from…
Ray Of Hope
When KCNQ2 Mom Holley Moseley decided to write the story of her daughter’s harrowing odyssey from desperately ill child to cheerful teenager, she knew exactly what the title had to be. “She’s my Ray of Hope.” Ray of Hope tells the story of RayAnn Heller, a little girl born with rare genetic epilepsy KCNQ2. RayAnn…
What’s in a name? KCNQ2 Cure Alliance
What’s in a name? The question sometimes comes up on how you name a foundation started for a condition such as KCNQ2 Encephalopathy. Coming off our third annual Summit, I thought it was timely to reflect on our name and the meaning behind it. Read straight through, it states our mission. KCNQ2. It reflects the…