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  • Politics and Other Drugs

    Join Emmy award-winning journalist Sara James for your political fix, 7pm Thursday 20th July at the Macedon Wine Room in Melbourne, Australia. Trampled by the Trump Train? Broken by Brexit? Left wondering about One Nation? You’ve just survived the Year of Voting Dangerously. The most shocking series of elections since WWII shook the world order…

  • 2017 New Horizons in Science

    In our second annual scientific dinner, world-leading researchers King and Olson explore the latest scientific frontier—and explain how venom from tarantulas, scorpions, sea anemones and pit vipers could help save lives.

    $200
  • Epilepsy Awareness Month

    Epilepsy is the 4th most common neurological disease in the nation. In fact, 1 in 26 people will be diagnosed with epilepsy at some point in their lifetime. Yet epilepsy remains misunderstood by the general public, discriminated against, and underfunded in research initiatives. Anyone can have epilepsy, and everyone should know about the prevalence, impact…

  • 2018 KCNQ2 Cure Family & Professional Summit

    Sheraton Park Hotel at the Anaheim Resort Anaheim, CA, United States

    KCNQ2 Cure is pleased to announce that our 2018 Summit will take place on September 14-16, 2018 at the Sheraton Park Hotel at the Anaheim Resort in Anaheim, California. The Summit will include family and professional sessions, childcare areas, and family events. A special room rate of $139/night + taxes and fees has been set…

  • 2018 New Horizons and Science – JURASSIC ARC: From Dinosaurs to DNA

    Fundraiser_handbook_cover

    Presented by KCNQ2 Cure Alliance and PwC Australia Discoveries from the New Age of Exploration. Join us for a night of scientific wow and wonder to raise money for those with a change in theri KCNQ2 gene. Dr. Lindsay Zanno is a trailblazer in more ways than one. She’s the woman who trekked the rugged American…

  • A New Clinical Trial in KCNQ2-DEE and Upcoming Related Patient Survey

    A New Clinical Trial in KCNQ2-DEE and Upcoming Related Patient Survey The KCNQ2 Cure Alliance has invited Dr. John Millichap, a Pediatric Epileptologist focused on KCNQ2 developmental and epileptic encephalopathy (KCNQ2-DEE), and Dr. Simon Pimstone, CEO of Xenon Pharmaceuticals, to participate in this webinar. Moderated by Caroline Loewy from the KCNQ2 Cure Alliance, topics will…

  • Fam Summer Classic

    Jersey Shore Arena Wall, NJ

    Join our friends and families as they raise awareness of KCNQ2. A portion of the proceeds will go to KCNQ2 Cure Alliance to help Nolan and his friends find better medicine to live their best life possible.

    $10
  • Update on KCNQ2 Studies in the Channelopathy-associated Epilepsy Research Center without Walls

    This webinar will provide updates to the KCNQ2 community regarding ongoing studies by the Channelopathy-associated Epilepsy Research Center without Walls. The main focus will be on efforts to determine the functional consequences of 80 KCNQ2 variants of unknown significance, and on investigations using human induced pluripotent stem cells (hiPSC) to create KCNQ2-mutant neurons for physiological…

  • KCNQ2 goes GLOCAL

    This October 19th and 20th we want as many people as possible to find a way to celebrate the KCNQ2 community and to raise some money at the same time. We are a diverse group with many different ages and locations. And though we are global we are made up of people living in different…