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THIS IS US! I don’t often share our private battle but it’s KCNQ2 awareness week March 1-7 and I want to be a part of the movement. So what is KCNQ2? It’s a severe rare epileptic disorder, but honestly, it’s different for every afflicted person, and family. So, what is KCNQ2 to Nolan? It is…
What is a matching gift? A matching gift is a charitable donation your company gives on your behalf. It is based on donations you’ve provided an organization. How do companies decide which organizations to support? According to Double the Donation, “restrictions for eligibility ultimately fall to the employer, but the most common restriction is for…
Collaboration is key to efficiently advancing our mission to improve the lives of patients with KCNQ2 developmental and epileptic encephalopathy.
While KCNQ2 itself is a rare disease, it has many commonalities with other rare and not-so-rare disorders, and manifests with symptoms – such as autism, sleep and mood disorders, and GI issues – that are seen quite commonly. We welcome discussions and partnerships with doctors, researchers, academic institutions, biopharmaceutical companies, and patient organizations, on a global basis, who share our passion of advancing treatments for patients with KCNQ2. If you are interested in opening the dialogue with KCNQ2 Cure Alliance, please contact Caroline Loewy.