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KCNQ2 Observational Study
KCNQ2 Natural History Study
The ABC's of KCNQ2
COMBINEDBrain Project
KCNQ2 Cure's Fundraising Handbook
Be an active supporter in the quest to cure KCNQ2 Developmental and Epileptic Encephalopathy. Download our toolkit to launch your personal fundraising event.
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KCNQ2 Connections
KCNQ2-Related Epilepsy ICD-10 Codes Approved!
What is an ICD-10 Code? Developed by the World Health Organization (WHO), this is the tenth version of the International Classification of Diseases (ICD), known as ICD-10. It is a system used worldwide by doctors, hospitals, insurance companies, and health organizations to classify and code all diagnoses, symptoms, and procedures. Each code is unique and…
All that Jazz: Success of the 2024 New Horizons in Science Dinner
A night of jazz and jubilation in Melbourne at the fifth KCNQ2 Cure New Horizons in Science Dinner on April 11th. Volunteers decked out in New Orleans masks transformed host venue ANZ Bank into a “Big Easy” nightclub and welcomed guests with Mardi Gras beads, signature cocktails, and champagne. Jamming at the keyboard was the…
KCNQ2 Collaborations
Collaboration is key to efficiently advancing our mission to improve the lives of patients with KCNQ2 developmental and epileptic encephalopathy.
While KCNQ2 itself is a rare disease, it has many commonalities with other rare and not-so-rare disorders and manifests with symptoms – such as autism, sleep and mood disorders, and GI issues – that are seen quite commonly. We welcome discussions and partnerships with doctors, researchers, academic institutions, biopharmaceutical companies, and patient organizations, on a global basis, who share our passion for advancing treatments for patients with KCNQ2. If you are interested in opening the dialogue with KCNQ2 Cure Alliance, please contact Caroline Loewy.
Our Partners
