The KCNQ2 Cure Alliance moderates private support groups for parents and primary caregivers of loved ones with KCNQ2 developmental and epileptic encephalopathy. These are a great resource for families to ask questions and find support.
The families in the support groups recognize the immeasurable value of communicating and sharing experiences in a closed/confidential setting. By sharing our stories, we pass on information relating to the diagnosis, treatments, medications and research. The families in the group provide comfort, support, strength and love when you need them most.
To join, please follow these steps:
- Request to join our Support Group on Facebook (you must have a Facebook account to proceed).
- If you do not receive an approval notice on Facebook within 5 business days please send us a message.
We may require additional information to process your request.