PARENT CONNECTIONS and SUPPORT

The KCNQ2 Cure Alliance moderates private support groups for parents and primary caregivers of loved ones with KCNQ2 developmental and epileptic encephalopathy. These are a great resource for families to ask questions and find support.

The families in the support groups recognize the immeasurable value of communicating and sharing experiences in a closed/confidential setting. By sharing our stories, we pass on information relating to the diagnosis, treatments, medications and research. The families in the group provide comfort, support, strength and love when you need them most.

To join, please follow these steps:

  • Fill out the form below to join the KCNQ2 Cure Family Connections and agree to the Terms of Use.
  • Request to join our Support Group on Facebook (you must have a Facebook account to proceed).
  • If you do not receive an approval notice on Facebook within 5 business days please send us a message.
    We may require additional information to process your request.
kcnq2 parents






YesNo


I verify that the information provided is accurate to the best of my knowledge. I understand that providing false or inaccurate information may result in my dismissal from the KCNQ2 Cure Encephalopathy support group.

KCNQ2 family

Where to find us