KCNQ2 Connections

KCNQ2 author Krystal Givens

Jake KCNQ2

Q&A with Krystal Givens, author of: A Song for Someone Special What a journey to write a book! How did you go about writing, illustrating, publishing and now selling A Song for Someone Special? I always sing to my babies when they are little and I had been singing this song to Jake and my…

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Parents connecting in Germany

parents

The KCNQ2 community is growing rapidly due to better awareness by doctors, parents, and our international foundation. We know that getting answers is crucial for parents, and meeting others with the same diagnosis can be life-changing. After many months and sometimes years of uncertainty we all feel comforted in the knowledge that we are not…

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What’s in a name? KCNQ2 Cure Alliance

2016 summit

What’s in a name? The question sometimes comes up on how you name a foundation started for a condition such as KCNQ2 Encephalopathy. Coming off our third annual Summit, I thought it was timely to reflect on our name and the meaning behind it. Read straight through, it states our mission. KCNQ2. It reflects the…

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New Horizons of Pluto, Jupiter, and KCNQ2

kcnq2 awareness fundraise

  Hi Everyone – Welcome to our new blog. We want to keep you updated on some of the some of the great things so many people are doing on behalf of those with KCNQ2. We would like begin by extending a very special thank you to Tony Gleason. Some of you may have met…

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