NEWS & BLOG
Stay up to date with the latest news and updates from KCNQ2 Cure.
GLOCAL – Brews for KCNQ2
On Saturday, October 19th we got a chance to celebrate our community, raise some money and awareness for KCNQ2 Cure. We hosted an event at the Silver Branch Brewing Company…
Working Together for Early Diagnosis of Rare Epilepsies
In the middle of August, I had the opportunity to spend an afternoon in Chicago meeting with a group of people from the world of rare diseases. Biomarin invited a…
KCNQ2 Cure represented at the 8th China Rare Diseases Summit
Our very own Tony Gleason recently had an opportunity to represent KCNQ2 Cure Alliance at the 8th China Rare Diseases Summit held in Shenzhen China. The summit had 18 sub-forums,…
KCNQ2 Cure Alliance Joins Epilepsy Foundation Research Roundtable
On March 21-22, I had the opportunity to represent the KCNQ2 Cure Alliance at the 2019 Research Roundtable for Epilepsy organized by the Epilepsy Foundation. Now in its fourth year,…
Rare Disease Legislative Advocates
Last week I spent two days around the halls of Congress, lobbying as part of the Rare Disease Week activities on Capitol Hill, organized by the Rare Disease Legislative Advocates…
AES 2018
AMERICAN EPILEPSY SOCIETY 2018 and KCNQ2 The annual meeting of the American Epilepsy Society (AES) is the premier scientific meeting for the physicians, scientists, pharmaceutical industry, and patient groups engaged…
Ray Of Hope
When KCNQ2 Mom Holley Moseley decided to write the story of her daughter’s harrowing odyssey from desperately ill child to cheerful teenager, she knew exactly what the title had to…
Healthcare for Disabled Children Secured
We are so excited to share the tremendous achievement of our own Mark Fitzpatrick of Dublin, Ireland. Through Mark’s unwavering efforts over nearly three years, he has secured the right…
KCNQ2 and Rare Disease Day 2017
Denver, Colorado The KCNQ2 Cure Alliance celebrated Rare Disease Day 2017 working to improve the lives of our children with efforts on multiple fronts. An international team of parents and…
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