NEWS & BLOG
Stay up to date with the latest news and updates from KCNQ2 Cure.
KCNQ2: What’s in the Alphabet Soup?
Experts have known for some time what the KCNQ2 gene does, and it was named accordingly – “K” for the scientific symbol for potassium, “CN” as an abbreviation for channel,…
Support KCNQ2 Cure Alliance every time you shop on Amazon
Donating to the KCNQ2 Cure Alliance is as easy as shopping online… literally! You can give even more when you sign up for AmazonSmile – a simple and automatic way…
Healthcare for Disabled Children Secured
We are so excited to share the tremendous achievement of our own Mark Fitzpatrick of Dublin, Ireland. Through Mark’s unwavering efforts over nearly three years, he has secured the right…
KCNQ2 and Rare Disease Day 2017
Denver, Colorado The KCNQ2 Cure Alliance celebrated Rare Disease Day 2017 working to improve the lives of our children with efforts on multiple fronts. An international team of parents and…
KCNQ2 author Krystal Givens
Q&A with Krystal Givens, author of: A Song for Someone Special What a journey to write a book! How did you go about writing, illustrating, publishing and now selling A…
Parents connecting in Germany
The KCNQ2 community is growing rapidly due to better awareness by doctors, parents, and our international foundation. We know that getting answers is crucial for parents, and meeting others with…
What’s in a name? KCNQ2 Cure Alliance
What’s in a name? The question sometimes comes up on how you name a foundation started for a condition such as KCNQ2 Encephalopathy. Coming off our third annual Summit, I…
Old Friends, New Research, and How to See Around Corners
Old Friends, New Research, and How to See Around Corners Hi Everyone – Lots of exciting things are happening in the KCNQ2 community in cities and towns all over…
New Horizons of Pluto, Jupiter, and KCNQ2
Hi Everyone – Welcome to our new blog. We want to keep you updated on some of the some of the great things so many people are doing on…
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