NEWS & BLOG
Stay up to date with the latest news and updates from KCNQ2 Cure.
The KCNQ2 Cure Alliance publishes KCNQ2 Connections, our newsletter that will keep you up to date on highlighted blogs and news.
If you're looking to stay connected to KCNQ2 research and the KCNQ2 community, you've come to the right place. Our newsletter will keep you in the loop on:
- KCNQ2 Research – highlights new developments and clinical trial opportunities with links to helpful explanations on our website
- KCNQ2 Resources – new downloads, webinars, and more, so you won't miss any opportunities to stay informed and inspired
- Event Updates on our conference, events, and other chances to tap into the KCNQ2 community
Whether you’re a parent, friend, or researcher, we’ll keep you up to date with helpful information.
Rare Disease Legislative Advocates
Last week I spent two days around the halls of Congress, lobbying as part of the Rare Disease Week activities on Capitol Hill, organized by the Rare Disease Legislative Advocates…
KCNQ2 Cure Alliance Announces Collaboration with KCNQ2.e.v.
KCNQ2 Cure Alliance Announces Collaboration with KCNQ2.e.v., of Trier, Germany KCNQ2 Cure Alliance today announced it is collaborating with KCNQ2 e.v., of Trier, Germany. Simone and Sebastian Bethge, whose son,…
AES 2018
AMERICAN EPILEPSY SOCIETY 2018 and KCNQ2 The annual meeting of the American Epilepsy Society (AES) is the premier scientific meeting for the physicians, scientists, pharmaceutical industry, and patient groups engaged…
Ray Of Hope
When KCNQ2 Mom Holley Moseley decided to write the story of her daughter’s harrowing odyssey from desperately ill child to cheerful teenager, she knew exactly what the title had to…
KCNQ2: What’s in the Alphabet Soup?
Experts have known for some time what the KCNQ2 gene does, and it was named accordingly – “K” for the scientific symbol for potassium, “CN” as an abbreviation for channel,…
Support KCNQ2 Cure Alliance every time you shop on Amazon
Donating to the KCNQ2 Cure Alliance is as easy as shopping online… literally! You can give even more when you sign up for AmazonSmile – a simple and automatic way…
Healthcare for Disabled Children Secured
We are so excited to share the tremendous achievement of our own Mark Fitzpatrick of Dublin, Ireland. Through Mark’s unwavering efforts over nearly three years, he has secured the right…
KCNQ2 and Rare Disease Day 2017
Denver, Colorado The KCNQ2 Cure Alliance celebrated Rare Disease Day 2017 working to improve the lives of our children with efforts on multiple fronts. An international team of parents and…
KCNQ2 author Krystal Givens
Q&A with Krystal Givens, author of: A Song for Someone Special What a journey to write a book! How did you go about writing, illustrating, publishing, and now selling A…
Parents connecting in Germany
The KCNQ2 community is growing rapidly due to better awareness by doctors, parents, and our international foundation. We know that getting answers is crucial for parents, and meeting others with…
What’s in a name? KCNQ2 Cure Alliance
What’s in a name? The question sometimes comes up on how you name a foundation started for a condition such as KCNQ2 Encephalopathy. Coming off our third annual Summit, I…
Old Friends, New Research, and How to See Around Corners
Old Friends, New Research, and How to See Around Corners Hi Everyone – Lots of exciting things are happening in the KCNQ2 community in cities and towns all over the…